Saturday, 30 August 2014

What is a Saint?

 

SATURDAY, AUGUST 30, 2014

What is a Saint?

When I think of someone as a Saint, my mind immediately goes to Viola Williams, Eric's Mom. In my eyes, she could do no wrong; she actively would seek out the weak and weary and take them into her home for comfort from their worldly worries. The knock on the door was often in the early morning or late night, but she never turned anyone away; she loved unconditionally. Life to her was beautiful; she was raised in humble circumstances, served a mission in Hawaii, and married the love of her life Ray Williams. Ray was a postal worker, and she was an accountant. I never saw them quarrel; they learned the art of laughter and happiness together as they struggled through life's challenges together; I miss them both dearly. I look to Vi as my ultimate example and know without a doubt I will feel her loving arms around me again when I leave this life and start my new journey.

Someone recently told me, "You are a saint." To that person, I said, "I am not a Saint unless you think of a Saint as a sinner who just keeps trying to be better than they were the day before." 

Honestly, I keep tracing the steps of where I've been these past 5 years and cannot comprehend how I've been able to continue on. I read some of my old blog posts, and I can see the Lord's handwriting those words; he has been with me every step.

With this past trial, I am trying to deal with, I feel very vulnerable; it's hard to speak sometimes to people, my eyes tear up. The aching of this is so real to me; I remember not getting the Villain out of my head; it was a day-to-day struggle, fighting to stay alive. I have poured out my heart and soul to the Lord, sometimes feeling his loving arms around me and sometimes deserted and alone. The feeling of peace and knowing His grace remains with me has certainly gotten me through some unbearable times.

While talking to Doctor Northfelt, I told him it's hard for me to look in the mirror and be ok with what I see. This is a change even I have to get used to seeing; right now, I am dealing with it my way. It's hard to feel attractive for my husband; I wonder if I am sexy to him anymore. Will I be able to live with this face if I have to? I asked Eric if he is embarrassed to walk with me or hold my hand in public; I knew his answer, but I still needed to ask. This transitional period is challenging, very hard. I'm grateful for Dr. Northfelt; although I shared with him not all of what I just transferred here, he is always so good at listening.

 The people who know me know my heart, which has not changed. I sometimes feel lonely; when I was going through chemo and radiation, I had a support group, people I could talk to who were either going through it themselves or had already been down that road. We all had similar feelings and could help each other get through the bad days. I don't have anyone to talk to; I don't know anyone who has been through this life-altering trauma. I do my best to keep positive, but smiling is tricky because it looks so weird; one side smiles while the other is "normal"  Even when I am happy, I catch a glimpse of what I look like when I smile and it is hideous to look at. So this leaves me in a predicament, do I never smile or laugh again? No, it does mean that I need to learn to smile with my eyes, and listen with my heart, knowing others who love me don't see that ugly smile. They see the heart of the same ole' 'say it like it is' Monya.

 I quit trying to understand why or how this happened. I instead have been focusing on happiness; what does happiness mean to me? In December, after my 1st ear surgery, a dear friend called me and invited me to a Nerium event, the 1st three times, I said I'd be there but either forgot, or simply didn't want to know what it was. I don't remember, but Shelli reminds me of it. Finally, she invited Eric and me to the Barrett Jackson event; I didn't want to go, but Eric wanted to get me out of the house. I was still feeling post-surgical pain, so I sat with the girls in Shelli's Nerium boot; II sat and observed (you know how I love to people watch) there were a ton of men coming up and buying this cream at the time I thought they were probably just coming back because all of these girls are drop dead gorgeous. I observed the interaction these girls had with people, then I was approached by Liz Decker. She said, "so what do you know about Nerium?" I said, "Nothing, but I want in, it's time for me to get out of this cancer world, and I heard you mention you are all going to St Louis in April; sign me up for that too; I need a girls trip" I went to St. Louis had an incredible time watching person after person serve and help each other. It really was quite impressive; EVERYONE was so happy. This was precisely what I needed, get out of my cancer world and start living my life with friends I had excluded because of my diagnosis. Shortly late,r I had the emergency surgeries at Mayo Clinic, all those Nerium people came to visit me; that pierced my heart, knowing these people are REALLY genuine. Then when I went to Cleveland Clinic for 7 weeks, they supported me and kept in touch. I continued to share my thoughts about Nerium with people and even shared enough to sign up a partner from a bed with my computer. I gave out Live Happy Magazines to everyone; day by day, I could see and feel myself gaining confidence in who I am again. I was welcomed back with open arms and tearful eyes when I came home. We took off again just where I left off, not skipping a beat or feeling vulnerable at all with them; my face is different; II thought it would be a deterrent and was afraid to face them; this is an excellent anti-aging company promoting beauty and looking younger, how in the world can I represent them? Now that I look back on that, I can see the Lord's hand leading me and guiding me to this place I thought I could never be in again. With that, I have to say "thank you" to all my Nerium Family, who has truly loved me like family. I may not be moving as quickly as I had goal initially, I've learned the goal is still the same, the timing is just different, and finally, I've learned that those who genuinely love you will never leave you; this, my friends are unconditional love, so Saint I may never be, but trying to be better day by day, yes I can do that.

Friday, 29 August 2014

Botox...Seriously?


FRIDAY, AUGUST 29, 2014

Botox...Seriously?

Yesterday I was at work sitting at my desk, and a girl walked up to me and whispered, "where did you get your Botox done on your forehead" I whispered back with a shhh and finger over my crooked mouth. "Are you kidding me? She said I don't have Botox, "then why doesn't your eyebrow move?" "Umm, because I have a partial facial paralysis." she then said, "Oh, you were gone for a while and I just assumed when I saw you that you must have had some Botox, or plastic surgery done." Again, I'm laughing inside. Still, I replied as I took off my reading glasses "look at me, I mean really look at me, does it look like I had plastic surgery? If this is the result of plastic surgery, I got ripped off." 

Wednesday, I had an appointment with Dr. Barrs at Mayo Clinic. I was a little anxious to see him and to see what his reaction to me would be. I love him and was worried he would be upset with me for going to Cleveland Clinic. I couldn't of been more wrong; he came in with his big smile, arms out, reached for a hug, and said, "As I live and breath, who is this beautiful patient?" Pleased as I could be, I jumped up and hugged him back. I told him I felt like I was HOME at Mayo Clinic, not that there was really anything I didn't like about Cleveland Clinic, but there is a reason Mayo comes in #1 every year with ratings from patients and medical statistics. I told him Dr. Haberkamp was great to work with and that my leaving had nothing to do with him; it was the procedure the other Doctor proposed at Mayo. I was just jabbering. He shook his head and said, "I was never upset or took it personally." even if that was not really how he felt, he was classy enough to make me believe him. He sat on the chair before me and wanted to hear the Cleveland Clinic experience. I also told him Dr. Haberkamp said he wanted us to tell Dr. Barrs his work on my ear was impeccable.
He examined my ear and said everything looked good, but we will need MRIs a couple of times a year on the head. Kathleen came in to visit with me; she is beautiful inside and out, and was so concerned about me, she embraced me as she left the examining room and said "I love you"

  My eye is still the biggest concern now, he agrees but I'm doing all I've been asked to do. Cleveland Clinic is calling to schedule the next surgery, I told Erin (gastman's PA) I can't think about that right now. That chapter needs to end, ironically enough I think it's just the beginning of the end. This is so hard.

Today, Friday I had the privilege of seeing my oncologist Dr. Donald Northfelt. I think for most cancer patients this is a bitter/sweet appointment to have. I started to fret and worry last night, my mind has been so pre-occupied lately with all that has happened, I have not let my  brain think of today. No panic attacks getting off the 3rd floor elevator today, that's progress. Maryann came in to see me, greeted me with a huge hug, we both had tears. She is incredibly insightful, when I was in Cleveland she said a prayer with me over the phone. We visited awhile, it felt warm and loving to be with "my" people again--I know both Mayo Clinic campus's like the back of my hand, but today being back was a feeling of reunion, rather than burden. Anxiously waiting to see Dr. Northfelt, I am so grateful I listened to the spirit when I was led to him for my oncologist, I love him. He went over my blood work and said it looks good right now. For me, for right now, as in today, this is who I needed to see. Dr. Northfelt promised to be with me the entire journey and so far, he has, he gets it. Once he was done with his report and examination, he sat down looked at me, no words needed to be said, I could tell by looking in his eye's he could feel my burden was heavy. We talked a bit about the past few months, but didn't hover...we moved on to happier thoughts. I told him about working with Nerium and how positive the atmosphere is for me. I also explained to him about the Live Happy Movement trying to get more happiness in the world by spreading my own happy thoughts with others hoping they will also spread the word to BE HAPPY no matter what the circumstance. We had a great visit, I will never be able to articulate the feelings I have of HOPE just because he is who he is, not only a wonderful doctor but knowing he deals with people like me everyday, I always feel like I am his only patient, and that he loves me.

2 COMMENTS:

Anonymous said...

What a sweet, grateful post.

Thanks for this

Tuesday, 19 August 2014

Back To Work

 

TUESDAY, AUGUST 19, 2014

Back to Work

I decided to go back to work; my doctors in Cleveland would have wanted me to wait a bit longer, but I couldn't sit around. I look in the mirror and I am still not ready to accept what I see; I really thought I was. Last week I finished my work; it was a difficult transition, and my eye continued to be annoyed. Cleveland Clinic PA told me to massage the lower lid to strengthen the muscle; I have been doing that, but still, it waters constantly to the point of not being able to see out of my right eye. Mayo Clinic says I have chronic dry eye, which is weird since it always waters. They are trying to fit me in this week. Work was challenging; my foot was so swollen by the end of each day, I had a tough time getting my shoes on. I tried to spend the weekend elevating it; I don't have a vital education about how nerves all I know is it takes a year for things to truly heal. If this last surgery did not work, this is what is next. They will make an incision from my hairline, ear to ear, pull back my face, take the nerve from the left side, and attach it to the right side, then wait another year.

Being at work, I felt vulnerable as I walked into the building; I usually like to smile and greet people with a happy attitude. Alot of people did not recognize me with my short hair and odd-looking face. I even had someone ask if I gained all my weight while I was gone...Yes, I did...I was on two different steroids and ballooned up a bit. I am now off them and back to my regular eating habits to get back to my average weight. When others notice, then it must be a noticeable change.

I am always amazed at what my brain can retain, and what takes time to recall. My job at US Airways is in the International Reservations Department. There is a lot of information most people take for granted that they know how to do. I've realized, since being back, how amazing my brain is. Reactivating those brain cells and muscles, I have not used for a few months, is slowly coming back without having to look at my notes.

I am struggling to keep my spirits up and stay positive. One way I do this is to continue to read an enjoyable book every day for 30 minutes...this gives me HOPE in my purpose in life. It is so easy to wonder "why" when that happens; I have to get on my knees and say, "thank you for this trial,  I am trying so hard to understand; please give me guidance and strength to know what to do, now that it is done there is not much I can do to change it, but now it is time for reality and for me to live with it, I accept that, but please help me along the way, give those nudges of the spirit when I am bombarded with doubt." 

I marvel at my ignorance; I once thought I had all I could deal with as a youth, and that my Heavenly Father had given me quite a challenge to overcome, and when I finally did and was able to truly forgive and move forward, I just knew that was it for me ... If I could overcome that, I would be left alone for life... no more trials. He really does give us what He knows we can handle, but He is also trying to teach me something through all this. I had a dream that allowed me to see and was explicitly told that I have a purpose here on earth; it's just so hard to grasp what I've been asked to do and not say, "why? Why me? I try to believe that I am of infinite worth and that I should be saying "why not" Maybe because I know all my faults and know the things I need to work on, I am not a particular person, no different than anyone else, the world is filled with people who are struggling. A part of me wants to negotiate my way out of this one.

Monday, 18 August 2014

My Recker Love

 

TUESDAY, AUGUST 19, 2014

My little Recker Love

How can anyone look at this sweet spirit
and be cruel? 
I am so upset tonight that I cannot sleep, thinking about our special grandson. He is in pre-school, and he has parents who care for him. Kayla is protective and knowledgeable about Autism. Today, I'm sad that he could not defend himself while in the care of the school system.
I thought it would have been another child who hurt him, but it was an adult.

He was treated like an animal on a leash; what a horrible sight to see when his respite worker picked him up from school. Kayla is devastated; my tears and prayers are for this sweet little angel tonight.
I don't know what I can say specifically about the case, but my heart is bursting with pain. I wish people would listen with their hearts, and say to themselves, "kindness begins with me."


Recker has Autism-He is NOT a
burden; he is misunderstood.
Sometimes he just needs to run free.

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