Showing posts with label Fear. Show all posts
Showing posts with label Fear. Show all posts

Thursday, 1 December 2022

You're the MOM



     Eric brought me home from the hospital on the evening of Nov 19th. On Tuesday, the 29th of November, I drove him to the surgery center, just a mile from my house. I wasn't allowed to go back with him until he went into surgery like he always did with me. Before he returned, we hugged and said, "I love you; see you soon." 

    I went home, waiting for the surgery center to call and say all was fine, and I never heard from them. Eric called me and said the center decided to keep him one more night. They had been giving him fluids, but he could not go to the bathroom. I asked about his chest pain and if he still had acid reflux. He said yes, but they were giving him Prilosec. We talked until he fell asleep, and I said, "I love you too; see you soon."

    When he got home, his face was white; he said he was lightheaded, but he could not sit or lie down. We walked during the night, and I could see he was in pain. I ordered smoothies for both of us in the morning, and he said it made him feel better. I told him I had to get my blood taken and I'd be back in an hour. I asked him if he thought he would be okay if I left him for the tests. He told me to go and that he would be ok. I handed him his phone; his walker was next to his recliner, but he hadn't slept all night, so I asked him if he wanted half of something to help him sleep for a while. Looking back on this, I am not one to live with regrets, but this was the biggest regret of my life, I wish I'd never left him.

    I wasn't home in an hour; the doctor's receptionist told me I was late and that my appointment was at Thunderbird Mayo Clinic. This was not a close drive, I worried about leaving Eric, but went against my judgment and left for the appointment. My daughter Kayla went to check on Eric. Then she called me back to tell me she had called 911. I was already on my way home but could not drive fast enough, my heart was racing, and I was scared.

    I made it home with firetrucks, an ambulance, and one officer, and my heart was beating as they rushed him to the emergency room: Kayla drove me there. When they got oxygen on him, he said he felt much better. We were there for several hours, and his blood pressure was going too low, then too high. He was able to speak to us and was coherent. I called Clarence Schaub and Kyhl Powell and asked if they could bless Eric. He loves them, so he was happy when they arrived. Soon after that, Kayla came back, and the ER personnel said it would be better if I left and got some sleep because it would be a while for his room to be ready. Eric begged me to go home with someone else; I told him Kayla had brought me and would take me home but that I really didn't want to leave him like this, I didn't want this to be the last time I could talk to him. Eric assured me he was well cared for, I teared up saying, "I don't want this to be our last conversation." Eric told me to stop talking like that, he would be fine.

    At 2:36 am, I received a call saying they had intubated him, and he was in an induced medical coma, and now he was in the Heart Hospital next door, but there are strict visiting hours in the ICU. I could not go until 9:00 am and waiting for that long was challenging. The last thing I said before I came home from the ER was, I begged Eric to let me stay; he said, "No, you are still recovering, I love you, but I'm in good hands and feel better. I'll see you tomorrow," I said, "I love you."

        When I first looked at Eric, I cried. He looked so vulnerable, and I KNOW he was scared when he couldn't breathe. Someone from my family is always with him. 

    The cardiologist, Dr. Greene came into the waiting area and was trying to talk to me, but Kaitlyn kept asking questions and standing in front of me while trying to give me information about Eric. He finally asked who she was, she said she was his daughter and he told her he needed to talk to me as his wife and Power of Attorney. Dr. Greene told us that Eric's arteries were completely blocked and calcified. It was possible that Eric had been having many little heart attacks over the years, and obviously didn't know about it. The doctor tried to cut through it with three different scalpels but could not budge it. He told us we were keeping him on life support to see if he could wake on his own, but if he came out of the coma and could breathe on his own, he had a long road ahead of him. I tried so hard to keep my emotions to myself but felt like I was not being respected by my children, Kaitlyn was rolling her eyes at every question I had for the doctor. She has had a problem with me for a few years, and I lost control of my emotions. I asked why she rolled her eyes at me, and her answer was "I roll my eyes at everyone." I continued in a harsh manner to ask her why she didn't like me, and why she was so mean to me. It started a horrible loud argument. The doctor could not tell us my husband who I have been with for over 40 years would make it through the night. It scared me so badly; Eric and I have always trusted each other but we have never discussed his investments. I knew about insurance and investments he and I had invested together, but I knew there were investments he made, and I did not want to lose anything Eric had worked on and loved so much, Eric is all about buying low and selling high.  My oldest daughter Kayla, said, "I can't believe you are worried about money when your husband could be dying. All you care about is Dad's money." ' I told her I know exactly how much money I will get from insurance Dad has always been good about keeping that up to date. From early in our marriage until now. I was talking about his investments and not knowing how to take care of any of that. How could she say something like that, my husband may be her Dad but she has no idea what goes through a woman's head when she thinks her husband is going to die. 

      It is now December, and I am hopeful Eric will make it through this and that even if we have to celebrate in the hospital I would, because this is his favorite time of year. When I'd get home at night there were always boxes from Amazon to bring in. I was trying to be aware of those to make sure each one of our grandchildren got a bean bag for themselves Dad and I thought that would be an easy gift and that the children would love it. When I opened them, I realized two were going to be too little for Recker and Ezra and I needed to return these and get bigger chairs for them. I had one day to do that so it would get to my house by Christmas. Then the next day I thought it would be a better day with Eric and with my children, but I was wrong. 

      I whispered to Eric how much I needed him and that I knew he was with his mom and dad, but not to get too comfortable up there because his family needed him, and that he and I still have a lot of life together. I played some songs from my phone quietly next to his ear. "I don't think I can do life without you, please come back to me."     

     In the waiting room was another story, I tried to be less combative but when Kaitlyn pulled her shirt over and said to me, "Look Mom, I don't have any garments on." She was trying to get a rise out of me. I said to her, "And...?" Why would I care if she had garments on? I knew she was trying to start something, so I said to her, "Why do you hate me so much?" Wrong question, I heard everything I have ever done wrong to her. Then I told her how she had hurt me too. This started an argument, Kayla told me, "But you're the mom." I wish I had a nickel every time I've heard that from her. Now I've heard it from all my girls. 

     Does that mean, my children are allowed to hurt my feelings, and be disrespectful and unkind just because I am their mother?  Kayla told me she is Autistic, and that one threw me for a loop as her mother I wondered why I didn't know about this when she was younger. I wanted to know what her doctor told her, and she blew up at me, she said, "So you think I'm lying? I don't have to show you my medical records." Because there is a lack of communication within our family I had no idea why she would be so angry, she was a mother of three boys, one with severe nonverbal Autism and one on the spectrum but he is high functioning. After that argument, I didn't hear from her for a year. When we finally did talk to me she tried to tell me how I was supposed to talk to her now. Okay, I agree with boundaries, but this was more than that, I was supposed to learn a whole new way of speaking to her after 34 years? Overnight, I was expected to speak to her as she requested. Dad and I talked about it and she had never said a word to him, he could speak to her like we always have. Why is he not held to a higher level? Because I'm the mom? She also said to me, "I was abused by someone, and it was in your home?" Very accusatory, I asked where? She said in our house in the Islands, when I asked who it was, she said "It is none of your business." Wow, I wonder if someday, God forbid, she finds out Recker was abused by a respite worker. When I watched him while she worked and she accused me of sexually abusing Recker, seriously? What is wrong with her? I would never touch one of my grandchildren or any child in that way EVER. It was then that I was no longer allowed to watch any of her children. That hurt me so badly, and Dad was angry too of all people in the world why in the hell would she think I would do such an evil thing to my grandchild? After that event, I wouldn't want to be alone with her children for fear she would turn me into CPS for something she 'thought' was real. 

     Back in the hospital waiting room, I decided after Blake started yelling at me that it was time for me to calm down and stay away from Kaitlyn, well actually all my children. Blake and my relationship has always been different than what I had with the girls of course they think he's always been my favorite. I said nothing to him. I know him, he can be as mad at me as he can and it's over, he tells me when I'm out of line, forgiveness is given on both our parts and it's over. My mom said that was exactly how I was growing up. These millennials have a new way of communicating and if it doesn't go their way, even if you are their mom, they are done with you. Kicked me out of their life like a piece of trash. 

     I spent some more time with Eric and then went home. I was crushed again just because I'm the mom. Why couldn't they say, "Mom that really hurt when you said ......" Then we could work on that? Why wait years and years to bring up things I don't even remember as a mother. I don't care what they think I was a good mother, and I am an excellent grandmother. I showed up at the hospital in the morning and all my kids were there, Kayla and Kaitlyn came back from visiting their dad and they said the nurses were doing something so no one could go back for an hour and a half. I watched as they ignored me but were perfectly had to order the right beanbags today. Kayla once again, thinking of herself, turned to me and said, "I can't believe your husband is dying and you are asking about Christmas. I can't talk to you. And I've told you how to speak to me." HUH? I just didn't want her children to be the only ones without a beanbag big enough for them. I guess because I'm the mom, It's not okay to ask questions about Christmas gifts that would have surely hurt their feelings if they got nothing, but it's okay when your dad is dying to be laughing at TIK TOK.

        I stood up to go see Eric and my girls blocked me saying, "Dad doesn't want you here, he said you are trying to kill him." I knew there was no way he said that, we may not be the perfect examples of parents, but Eric and I are in love and have been together for over 40 years. WTF was going on, I just knew Kayla and Kaitlyn had something to do with this, they would hurt me that much to get back at me ... just because I'm the mom. I was so embarrassed I ran to the EXIT to leave, and Haleigh followed me, she said, "Mom do you trust me?" My mind was all over the place. I had no idea what I said to her, but I do trust her. Haleigh is quieter in nature than any of the other children. Haleigh has been through the most with me. She helped take care of me when I was so sick during chemo and radiation, I will always be grateful to her, I ruined her senior year of HS.   

     The next day I came back, and the ICU guard told me I was not allowed in the hospital, that patients were at risk with me there, and especially my husband who thought I wanted to kill him. I said, "I am his POA, I would never hurt him EVER. Who put my name on this list?" She looked at me and said, "Kaitlyn, she is now his POA."   

     I was escorted out by security and asked not to come back. I was crying hysterically, and when I was walking to my car I looked up and saw my children watching me walk to my car.

     So now, I went home and waited for word about my husband but still would not be allowed in the hospital let alone ICU. I was hurt worse than I ever have been and what's worse I knew they didn't care. Blake came by the house that night ringing the doorbell banding on doors wanting to talk to me, but I couldn't, I was in shock still just staring around not knowing what to do next. I'm sorry Blake, I was in a whirlwind of emotions and did not know what to believe. 

      When Eric woke up, Blake called me, told me, and said he would be leaving for a rehab facility in a few days. I asked him if Dad had asked about me, and he said, "No, but you called me while I was in Eric's room and excused himself. When I came back in the room all he had to say was 'Was that mom?' I told him yes, and all he said was "Is she mad?" 

     He was awake and didn't want to know about me? It just didn't seem right, but my kids were in charge and taking over my marriage right before my eyes. I had no idea why he said what he said, I thought he was under life support. Now he's awake and it was obvious that I was not included in any choices about his care. After a couple of months, Haleigh called and wanted to know if Scott and Brian could come over and get his bed for where he was moving. I told her no if he wanted anything from the house, he needed to call me himself.

     And he did within five minutes. I told him unless he talked to me my divorce attorney had said nothing was to be removed from the house, which was no problem because that night someone tried to break in. The next day I went to Home Depot and took a quick course from one of the workers on what the best lock was and how to install them. 

    I told him I spoke with his financial planner that Eric always had me in mind when he made any investments and that it was better under these circumstances for me to take care of as much as I could now. I cried myself to sleep every night, and not once slept in the bed he and I shared.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             

    When I sat at home alone, I thought about how we didn't have a will written since my first daughter was born; I wasn't worried about money. He and I have discussed the insurance each of us would get if the other passed. But one thing we have never really talked about was his investments. I knew he had many, all with my name on them. Eric loves selling; his passion is getting a deal on the property, then turning around and making twice as much. I tried to explain to my kids I know the insurance policy on myself, my kids, and grandchildren-they will be taken care of. But they seemed angry at me for talking about dad's money; I told them this isn't about money. I have yet to learn about his investments. I've just always trusted him as a businessman. He never had to ask me about investments because I knew he wouldn't buy anything unless he knew we'd make money on it.

XOXO Monya BonBon



Friday, 11 November 2022

Meningitis




Eric took this at just the right moment.

    I'm on vacation as of 10 minutes ago. Eric is so excited about going away for a few days, as am I. We arrived at our condo in Mexico around 4:00pm. The weather was refreshing with a slight breeze from the ocean. The resort was quiet, and most importantly we found a great parking spot, Eric is having his second hip replaced on Tuesday, and we will have a few days to enjoy being together. Lately I've been so busy trying to finish "Pebbles in my Pocket," learning to let go of the things you can't control." and the "Happiness Junkie, #KindnessMatters. We haven't had much time together and we wanted time away.

          He rarely complains, but since his last surgery, he has had terrible acid reflexes that sound like they hurt. He said it hurt his chest. We stayed in the condominium but had so much fun lying on the sofa watching movies and keeping up on the Local Government election. We ate popcorn, snacks, and sandwiches for dinner, and then we went out.

           We had intimate conversations about the trials we have had and how after 40+ years we have served one another, forgiven one another, and learned more about each other, as far as our wants and needs we began writing our goals for 2023. We talked about our children, each one of them. Eric and I did our best to raise four responsible adults. Now it is their time to live the life they want and what makes them happy.

        We are both looking toward retirement and have written our goals for the next five years. He is so excited to start building our home in Mexico and selling a few condos, and then He surprised me with the layout of the house in Mexico and wanted to know my advice. Together we changed a few things, like bedroom sizes, bathroom placement, etc.

        On Monday, I woke up unable to balance, I ran into walls, and my right eye looked infected and bright red. I had a migraine like I've never had and eventually started having some hallucinations, people looked short, fat, and pregnant, even the men. I took a migraine medicine to hopefully help the pain as we drove from Mexico to the Mayo Clinic. On the way home, I spoke with Dr. Lettieri since it looked like it was an eye infection. I asked if we should come to County Hospital or Mayo Clinic. He said Mayo since the Maricopa Hospital does not have an ophthalmologist in the ER. then asked Eric to text him with an update from Mayo Clinic.

        In the Emergency Room, I was taken for a CT scan, lots of drug testing, and ordered an MRI. By now, my hallucinations were constant with my eyes open or closed. I could not take any pain medication because they did not want to alter the results, and medicines can do that. I was given a spinal tap, and I thought about my youngest granddaughter Florence, she has spina bifida, and I wondered how many times in her life she would have to do this. It helped me to stay still so the doctor could do this spinal tap quickly.

        I didn't get to my room until around 3:00 a.m. I texted Dr. Lettieri knowing he would be up and getting ready for work. Dr. Lettieri was in surgery at Mayo when I updated him. He came from surgery to check on me. He knows my story from the beginning to now. He found out who my Neurosurgeon was on duty and gave him the background. He told my neuro team this had nothing to do with my eye. Eric and I love Dr. Lettieri, Eric is always saying how lucky we are to have him on speed dial as we have had to use him several times. The Neurosurgeon respects Dr. Lettieri and was glad he called him so they could eliminate the eye as the main reason for the migraine and hallucinations.

        That night they took me in for the MRI around 10:00 pm. I asked Eric to go home, it's a long ride for him, and I wanted him to get home safely. He didn't want to leave, but I knew his hip was hurting, and he needed rest.

        The MRI was less than a fun time, I had to wear a mask in a tube that was already claustrophobic. It really scared me, so I closed my eyes and suffered through it. When they pulled me out to administer the contrast and dye. I asked if I could take off the mask, and the technician said since I did not move a muscle during the first round, it was okay for me to keep the mask off and it made an enormous difference. The pounding on my migraine made me throw up several times back to my room, and for the next couple of days...still had no pain medicine.

        Dr. Hasan, who is on my neurologist team, came into my room with Kayla and Eric, she finally had a diagnosis, I had viral meningitis. The swelling between my brain and the lining of the brain was infected and swollen, and this was what the hallucinations were coming from. Kaitlyn once again debated with a neurosurgeon through our family text. I did not have my phone, but Eric was reading it to me. Since Florence has spina bifida, she said the spinal fluid would not explain the slurred speech and hallucinations. It really hurt when Eric read that to me, A nurse happened to be in the room and then told my neurology team what she heard. She also heard me ask Eric if he thinks they all think I'm crazy, and he answered, "Yes."

            Dr. Hasan came to my bedside after Eric and Kayla left for the night. She held my hand and said the nurse told her about the conversation. She said, "I don't care if your family thinks you're crazy; you tell them what is happening to you, and the things you see are as real as they can be." Dr. Hassan said it is normal, and they've seen it before with meningitis patients. I thanked her for telling me this was normal. They ran every street drug test they could and knew I was not on drugs or that no alcohol use had happened. When the surgeon came in, he said Dr. Lettieri told him what was happening had nothing to do with any of the surgeries he had done. I also asked him to read the family text thread and tell me how to answer my daughter without causing more problems. His answer was, "I didn't get my degree from Google." I realized he read it the way I did like she doubted me without me saying anything about the contention this daughter has had about me for years. I decided it was not worth addressing, so I let it go. I just want peace and love in our family. But I was glad to know she was checking on me, I really think she doesn't like me.

        I felt like I couldn't get anyone to believe what I was seeing on the walls, ceiling, and floors. I asked Eric "Do you think the doctors think I'm crazy?" and he said, "I'm pretty sure they do, but I've known you longer than anyone. This is not normal behavior for you and yes, I believe you."

        The neurologist explained to me that from the spinal tap, they did the first night, they knew it was meningitis. Then they grew cultures from the fluid of the spine. I was told after the MRI my brain looked 'beautiful', and the infection was not in my eye it was in the brain area. They told me Meningitis is either Bacterial or Viral, one not worse than the other, simply different procedures to treat. If someone comes into the ER with bacterial Meningitis, they send them home with antibiotics. When it is Viral, they must first find out the source of where it is coming from, which showed in between the brain lining and the brain, for it can take 10 days to clear up, but they've seen three months of recovery. They said I could not return to work when I was released. I spent most of my vacation in the hospital.

I took another 13 days for MLOA from American Airlines. I'm nervous about Eric's surgery tomorrow. Since his first hip surgery in August, he's had chest pains and horrible acid reflexes. 

He has cared for me as my caregiver for so long, and now I will have a chance to serve him when he comes home tomorrow.

XOXO Monya Bonbon






Saturday, 15 November 2014

Trusting

 

SATURDAY, NOVEMBER 15, 2014

Trusting

The worst pain a mother can feel is knowing her children are struggling with something you cannot understand or comfort them.
There have been times when my doubt has been as vast as the ocean, feeling like the waves need to sweep me away, not wanting to face the pain. Our oldest daughter Kayla and her husband Jeremy have two gorgeous boys. Recker is almost 5 years old. It's so hard to believe how fast he is growing.  Ezra will be two in February. He's been a spunky, smiley fun baby boy.  These little angels have brought me more joy than I ever thought imaginable.  Their laughter and unconditional love are contagious.

Ezra's squint eye..so cute

Ezra love

When Recker was 14 months old, he was diagnosed with Autism. He is non-verbal but has taught me to speak with my heart and eyes. The past five years have been so difficult for Kayla and Jeremy. Something I don't even try to understand. All I understand is that if it were not for Recker, I would not have made it through some days when I could barely get out of bed--he is my sweet baby boy, who saved me from going to a very dark place.

Two days ago, Ezra was also diagnosed with Autism. I was so sure he was fine. He was making animal noises, something Recker never did. He could point to the various parts of his body. Again, I don't remember Recker doing that. Over the past few months, Ezra has started to regress. Although Kayla tried her most demanding to prepare us, it could be true. I just didn't want to believe it. Ezra was doing everything differently until he didn't; gradually, he became distant.

Kayla did everything differently with her pregnancy, thinking it might be different. Ezra didn't get his shots like Recker did. She did everything differently--Now we know, his diagnosis is a shock to Eric and me, but not so much to Kayla and Jeremy, who I can honestly say have tried to prepare us for.
Recker School Picture--I love this.

Recker lives in an extraordinary world--I wish I could go
there with him.

When I found out, I just wanted to scream, "WHY?" I still do. I am hurt, angry, sad, and blessed all at the same time. These mixed emotions have rocked my little world and will take a few days, weeks, or months to get used to.  I just want Kayla and Jeremy's dreams of having a typical child to come true. This does not mean they do not love their boys. They love them more than life, but not hearing your child say "mom or dad" is heartbreaking.  They need time to mourn. We all do.

I don't in any way, shape, or form believe these boys are doomed and will not have a future that is anything less than we, as a family, teach them. I know they can and will be, such a blessing to our family and others. In fact, through their journey, they will be the ones who, against the odds, will teach us. Through their sweet spirits, they will guide us so much more about compassion and tolerance than we could ever learn in a book.

So, it leaves me with doubt, fear, and the unknown, but I know one thing for sure, and I can never say this enough, Heavenly Father sends those sweet boys to our family for a purpose.  We may never know what that purpose is but we have decided the reason does not matter as much as making the journey with them memorable and happy.  Autism is not fun. It is misunderstood.  I know so little about why a child is diagnosed with Autism. All I really know is that nothing has changed for me. I love them unconditionally; I will take them by the hand as they lead me and guide me back to where I want to be ... HEAVEN.

Monday, 29 September 2014

Find Me-Frozen Inside

Monday, SEPTEMBER 29, 2014

Find Me-Frozen Inside


There have been times when I've wanted to curl up and stay in the safety of a cocoon, much like a butterfly does. I've had days when I feel locked in a glass house with no way out and everyone watching. I want to fly free; I'm emotionally healing much slower than I expected. I'm trying hard to break out of the prison walls I've built around myself. I wish I had someone to talk to. I need to gain my grasp and be more authentic with people. I hide how tearfully hard it is for me not to be able to smile a big full smile; my frailties are being masked by a strong woman who has difficulty admitting her weaknesses.

I sometimes ache, trying so hard to hold back smiles or laughter for fear of what I look like to others. I caught myself wanting to laugh when I heard Ezra's huge belly laugh--he is so cute--but I caught my reflection in the mirror of our entryway and suddenly realized, "this is what other people see" This immediately took me down to a low I can't explain. I still feel so much Happiness in my heart & want to share it, especially with my grandchildren, but for some reason, I've let the adversary control my thoughts. The confusion contradicts what I feel inside, I don't understand it, so I do not expect anyone else to understand it. I'm trying my hardest to Live Happily. I love serving others; it warms my heart and lightens my load.

I love the Happiness Movement the United Nations agreed upon; the decision was made that the day will continue on March 20 of every year. I know and believe with all my heart that one person can make a difference, a rippling effect that can be wrapped around the hearts of people worldwide, regardless of race, culture, religious belief, or lifestyle. I am an ambassador of Happiness, but I still want to know if that contradicts how I feel on some days. I feel like I am on display; I see how people look at me and then quickly look away. I know because I, too, have done it. I've said on this blog that I don't believe people, in general, are vindictive or mean any harm; it's natural for a person to take a double look at something that is not what they are used to seeing. I just never thought I would be the one on display. I see them look, then look away and whisper to their friend, mother, or neighbor; they both look and quickly turn their back to me, usually because they know I have just seen what they did. The only thing that really holds me together is knowing He sees me, the REAL me--He knows I want to be me again; the sad part is because of what I've experienced, I know I will never be the same again. Although I didn't ask for this experience, I'm living it. I also realize that I have control over how I deal with the inner aching I continue to feel. I may not oversee my trials, but I have control over how I deal with them, and I choose to take it slow, understanding all that is expected of me, then proceed forward in faith and with a desire to continue to be the best I can be.

On the days when I work at UsAirways, the security guard always asks me, "how are you doing today, Monya?" and my answer is always the same "better than I was yesterday" I wrestle with what has been lost in my life, it's more than just dealing with cancer with and all the side effects. I carry a crushing weight on my shoulders when I cannot achieve my goals. I can't do this alone; my soul is tired and needs rest. I've pleaded for help so many times I seriously think I don't have any tears left to cry.
I'm giving my all, but sometimes I want to avoid hearing the answers. Saying I'm deaf is an understatement. I am so vulnerable right now; I know I need to be willing to put all my trust in the Lord's hands once more. I've been down this road before; I know this feeling. Taking a step forward is challenging, and it hurts to look backward. I want peace to speak louder than my fear. I have asked again, and again, and again "what am I supposed to learn" "What do you want me to do next?" When I'm finally ready to listen, I will go and be or do what He needs me to do.

I know this fear and pain that I am feeling needs to be turned over to the Lord, but for today, just for now, I'm frozen inside. I have no regrets; I've felt this pain before, and I will not bury it; I know I have to live it, and when I'm living in those shadows, He will find me, take me by the hand, and lead me to a brighter place.

LABELS: BLESSINGS, CANCER, FAITH, HEARING, HOPE, JOURNALING, LIVE HAPPY, LIVING, LOVE, MAYO CLINIC, PAIN, PEACE, SMILING, TRIALS 

Monday, 21 April 2014

Sleepless Nights & Rainbows

 

MONDAY, APRIL 21, 2014

Sleepless Nights & Rainbows

There is not much to say; I went to Mayo Clinic today and will be back tomorrow. Today, my ear has suddenly decided to turn for the worse. Yesterday I woke up with black on my pillow; I thought it might be some dried blood, but no such luck--it was fresh and black, but it was also Easter, and I wanted to spend a wonderful day with my family.
I felt really dizzy most of the day and had problems during sacrament concentrating as my ear was pounding in my head like a heartbeat. When I bowed my head during prayer, I thought my head was going to explode, and the equilibrium was off when I stood up. I saw Stephen Phelps on the stand and focused on the fact that I knew he was in pain too...sounds strange, but it was my way at that time of distracting myself. He is such an inspiration; few know of the pain he has, yet every week he's there playing the organ so beautifully; his testimony through his music plays directly to my heart every time.
I wore a shirt today that said, "Don't forget to Smile" I love that shirt--today, it helped me to get past the complaining passengers who were upset about their seat assignment or the guy who could not understand why US Airways would not allow him to bring his sheep on board to ride with the rest of the customers---???  !!!  Yeah, those are the calls I get, my friend who sits next to me is always listening to my calls, he draws a big smiley face and tacks it on the wall in front of me--so today I wore that shirt for Frank.
I met up with my dear friend Jori today; we had an hour or so to visit while we both got manicures. She is trying to move forward after the loss of her son CJ. She explained her Easter Sunday, my heart was whole; and I was trying to hold back the tears when she described the day. I'm pretty sure Heavenly Father knew I could not handle that one--losing a child is not something I want to ever endure, but if I do, Jori will be the one I go to. She's strong and has wisdom I could use.
Tonight, I want to be strong like the branches of a tree when a storm is raging. Time to get back down on my knees and ask Him to help me be strong like the wind--hoping that wind will push me further up this hill I'm climbing.
I've done all I can, listened to my doctors, taken my medicine, and tried the natural path; now it's time for me to decide if what I preach I can put into action. While at the doctor today, the cute resident who is usually there was not seeing me; I'm not sure if she is in that department anymore. Today I saw another adorable resident; he looked in my ear, didn't say much, and left the room to get Dr. Barr's. When he came in, I said while holding out my shirt, "don't forget to smile" trying to keep the energy positive, he said, "I hope you can smile" I was sure he was going to tell me all was well in the journey of my ear problems. Boy, was I off. It was the opposite. He brought in Kathleen, his nurse, to look, then he and she sucked out what they could. They rattled off a bunch of medical terms I'm not aware of, and I was told he wants to get this surgery ASAP--when Kathleen mentioned tomorrow--I was a little shocked--I'm not being given any choices? I guess I've been hoping to put off the inevitable; I thought I would be more intelligent than the doctor----big mistake---he's made an earthquake shake my soul today. So much for that "don't forget to smile" shirt.
Am I missing something? I've wanted to move out of the shadows and into the sun, taking baby steps and reconnecting with friends. I'm finally comfortable where I am in my life; an occasional visit to Mayo Clinic would be OK, but these weekly visits annoy me. Dr. Northfelt can't tell me I'm cancer free, but I've learned to live with that, cope with it, and trust in Him. Today I felt more alone than I have in an exceptionally long time. I had an appointment after Mayo Clinic; when I left, I pulled over my car and cried a river, then said a prayer, listened for an answer--NOTHING! When searching for answers in the past, I've always trusted He will answer back; he's always shown me that I can handle any trial that comes my way, I've always felt Him beside me, but today, I didn't feel it.

I'm scared; I know he knows my strength; I know He understands where my heart is; what is wrong this time? I feel like I'm being pulled back into that black hole that took me 4 years to crawl out of. I need my friends, I want to be with them, but I don't ever want them to see me like I was today. Tomorrow, Mayo Clinic will show up on my caller ID. I often want to go back to the days of no cell phones. I wish I could find the happiness I'm looking for. Tonight, it's time for me to get to sleep; it's quiet here; Eric is asleep. I haven't even had time to talk to him today. These surgeries will put me so far behind my goals--but for now, I'm going to bed, hopefully sleeping until 4:30, when I will rise up and start my day again. I said, "I will not have another surgery, no more; I'm done; it's time to let it go and leave it in the Lord's hands."  I guess taking the rain with the sunshine is the only way I will get to see the rainbows.

Tuesday, 24 September 2013

What it feels like to have a Stroke

 

TUESDAY, SEPTEMBER 24, 2013

What it feels like to have a Stroke


When you hear of someone having a TIA, this is a mini-stroke:
A transient ischemic attack (TIA) is a "mini-stroke" from a temporary blockage. Although a TIA doesn't cause permanent brain damage, it may cause stroke warning signs, which may last minutes or even hours. Think of this as a warning sign you shouldn't ignore.

On Friday, July21st I got up and told Eric I was getting a migraine headache. I went to work at Us Airways, and the headache got more intense, and my speech was slurred. I was embarrassed to speak on the phone with passengers because it sounded like I was stuttering. I was trying to get the words out; I knew exactly what I wanted to say, but the brain and the mouth were not communicating with each other.  I take great pride in the fact that I have a very good record with Us Airways not calling in sick or never being late since the day I started. --To most people, it's no big deal, but for me, it's an accomplishment.  Well on this day, July 21st, my headache continued as I spoke with passengers, I took migraine medicine and nothing was working, I simply packed up all my things and left.  On my way home Kaitlyn called and wanted to know if I would like to go to a movie with her and Brian and Blake, I remember that my speech was slurred, but did not think it was as bad as my kids were making it sound.
I drove to the wrong place. By the time I got to where Kailtyn was the right side of my face was completely numb--Blake called Eric, and he told him to get me to the closest ER.  I said "no, I'm fine I just have a headache and need to lay down" Blake then drove me to my primary care doctor who immediately told Blake to get me to the ER asap.  I cannot explain how frustrating it is to want to communicate. Still, the words were not coming out--I was confused and disoriented--The ER doctor was really upsetting me because he was asking about my thyroid, and I was trying to explain it to him. But he kept on telling me I must be confused, that my thyroid was incapable of going from hyper to hypo or the other way around--he said it was physically impossible--NO IT IS NOT--especially if you have Hashimoto's-- I was diagnosed with it a year ago.  I was sent home that night and told to see my neurologist at Mayo asap. I did on the following Monday. I took the films from the ER, plus the films from my last MRI and the new one the doctor did at Mayo, and it was confirmed a TIA.  The stroke I had was an ischemic stroke caused by a blood clot.  A hemorrhagic stroke is caused by bleeding in the brain. Most people die from a hemorrhagic stroke.  Stroke is the 3rd leading cause of death behind heart disease and cancer. If you think someone has had a stroke have them, say a simple sentence for you, raise their hands above their head, and ask them to smile. Call 911 if they have a problem doing any of these.
I have a family history of strokes from my father's side of the family.  To be honest, I have had the right side of my face go numb so many times since my late 20s, but I never thought anything about it.  Since I've had cancer, I am alerted to everything that happens in my body, I'm not paranoid, but I do react when something does not go away.  
I now take medicine daily to help with the TIA's. I have had a couple since that day, but nothing serious.  I think the scariest part of all this, is me driving while this was all going on.  I also did not realize I had left an hour early from work, I have never done anything like that in my life, and did not realize I had done it until I returned to work a few days later--My manager, knowing what had happened to me was so great to just erase that little error from my file--I love working for US Airways they have always been really good with me.  
Although it was a scary event, I'm glad I had my family to help take care of me and had previously told them if any of these warnings happened no matter what I said, that they were to get me to the nearest 
ER--now I know that Mayo has a stroke unit, and if it happens again, I will be heading there.



Wednesday, 11 September 2013

Bora Bora Day 9 & 10

SUNDAY, SEPTEMBER 11, 2013

Bora Bora Day 9 & 10

 Friday Day 9
Bora Bora is so commercialized. Most people who hear Bora Bora usually think it is the most beautiful of all the Islands, not me. It was nice but not the most beautiful, the most expensive and most commercialized. There are many celebrities who visit this Island, and this is the enticement--celebrities do not easily impress. This was just another Island to me.


Woke up, said a prayer that I would be able to enjoy the day, this is officially the longest we have ever been away from our children, and we have no communication with them at all.
We took the second tender into the Island and immediately Eric was talking to the local people, the ship charged $199 each for what we did and more for only $40 each.  We went in a 4x4 up a very steep mountain, they wanted us to see the canons from World War II, that were never shot off, the story was amazing. There were seven thousand men waiting on the top of this mountain, bunkering in waiting to be bombed, ready to shoot the cannons for defense of their land.  These men hid out for 7 years, I was astonished as the locals showed us the ditches, they hid in.  The bunker they kept the food in was still there, and I am not sure how they kept it cool and good enough for eating, they ate a lot off the land with all the fruits in season and fished for fresh fish--as many of them still do.


On this adventure we were joined by Maria and Antonio from Barcelona, and Jesus and Conchi on their honeymoon from the Canary Islands.  Jesus spoke little English, some French and they all spoke fluent Spanish.  Eric of course spoke all the languages at once--ha ha--one thing I can say about Eric is he tries so hard to understand and learn the culture and languages.  We spent the rest of the cruise with all these people, they were amazed at how much money they could save on excursions, and we loved the company.  For us the language was not a barrier, we tried to speak as much as we could in Spanish and they asked how to say everything in English.


Today is Friday and I cannot stop thinking about my children, Kaitlyn is off work, more than likely spending the day with Kayla and the boys.  Jeremy is now working in Prescott and is only able to come home on Friday's. He leavess Monday at 3 am to be at work on time--I worry about them, but the blessing is that Jeremy has a job. It may be difficult for Kayla, but she will manage, she is strong.


Eric and I had some good conversations on this trip, we are happy with all the decisions our children have made so far.  Being an empty nester has been extremely difficult for me; there is a time and a season for all things. I've learned that even at our age it is important to reevaluate decisions and goals. Satan works on the strongest and will take the weakest link in them to make it sound enticing and glorious--in this time of my life my goal is set on nothing less than the Celestial Kingdom--how do we do that? Serve others, even your spouse, encourage them in all they do and have done to help you, sharing the gospel with others, and living the attributes of Christ, this for me, is the only way to return and hear those words "well done thou good and faithful servant."

ONE OF THE LOCALS WHO TOOK US ON THE TOUR

THE OTHER TAHITIAN ON THE TOUR

ERIC AND I ON ONE OF THE CANNONS

ERIC IN THE LOOKOUT READY FOR FIRE

THE OTHER CANNON

THE BUNKER WHERE THEY KEPT FOOD

THE BEAUTIFUL OCEAN VIEWS

ERIC READY TO SWIM

ANOTHER VIEW OF ONE OF THE BAYS

This is a famous restaurant, celebrities come sign a $ and staple it to the wall












































































































Today was an enjoyable day getting to know our new friends from other countries, we are looking forward to tomorrow with them.

Day 10 Saturday Bora Bora

I am excited to spend the day with Maria, Antonio who have been married for 40 years, they do not drink alcohol and are just fun to be around--they try too hard to learn English every day. I must admit I don't try as hard as they do--but we are able to communicate well--Jesus and Conchi are adorable and have invited us to stay with them in the Canary Islands, which happens to be a place Eric would love to go.  Jesus is in the supply chain management business with pharmaceuticals and can speak with people from different languages and backgrounds so communication with him was much easier but not perfect--it was funny at times because our translations are not the same and could even be considered offensive, so we were easy to explain those times to them as well as them to us.  We took a boat ride out to see mantras with 12-15 wing spans--don't even ask if I got in the water the answer was NO. 

There were lemon sharks and even some tiger sharks--Eric and the rest of them had a fun time while Maria and I visited on the boat and took pictures.  We were able to go around the entire Island, go to the motu and have lunch and then back to the ship to get ready for dinner.  The ship only had 186 people on it, including the crew, so most of the people wondered how the Americans, ended up being such close friends with the people from Barcelona and the Canary Islands--We laughed all night, in fact we were the last to leave the restaurant.
The beaches are beautiful

Dinner, Jesus, Antonio, Eric-Conchi, Maria and I

Eric and I at dinner

What a fantastic day in Bora Bora
Day 10 Saturday
We spent another day exploring the Island with our newfound friends--
There was a movie filmed here called "couples retreat."

This is what we saw all day.
I could post them all but that would get boring



Our First and Last Thanksgiving

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