Vito Dies

 Frenchie, maybe you know I'm not sure, but Vito passed away on Sept 16, 2024. I will be going to his funeral tomorrow.

I'm so glad I could visit him and JoAnne a month ago. I was looking forward to living down the street from them. I haven't spoken to JoAnne, but I think she was getting prepared for him leaving. He fell on his electric scooter a month ago, which is why I went to visit them.

JoAnne told Terry, JoAnne said, "How could we lose Eric and Vito in the same year?" I am so sad for her. I think I am more sensitive about death now. I understand how she feels. I miss you so much, sometimes I still can't believe you are gone. 

I just finished reading the Book of Mormon. I don't know who could read it and not feel its truthfulness. My testimony and faith have been tested this year, but I know that when I pray, I always feel close to Heavenly Father. 

I'm so glad I have the gospel in my life. I have never needed it more than I do now. I am worried about moving into the new house and going to a new ward. Eric, we have been in this ward for over 30 years. I always thought we would never move because we loved our ward so much, but when it was split, everything changed. It's just not the same. The people in the 6th ward that we know and love have told me they feel the same about their new ward. I have been truly blessed by the prayers of many people in these wards. I will always be grateful for our connections here, but moving is the right thing to do, even if I am as scared as I am. 

See You Soon

Monya

You Are A Man of God

Hey Frenchie, I've been deciding whether to stay or stay in this house we built together. Blake showed me a house this week in Gilbert. A smaller home sounds much better than this BIG house and yard.  It's such a hard decision; we built this house as we wanted. We built this house around the pantry. Remember how adamant I was about having a big pantry? You made sure I had the pantry of my dreams. Thank you for loving me that much... lol.

I received a phone call from Lori Blandford telling me that Jeff was offering to sell me any of his specs for his cost. My initial reaction was to tell her no, I'm not ready for that yet. This is my worst nightmare. It goes to show me that I never know exactly what is going to happen next. I miss you very much. My heart is still broken. 

I cry myself to sleep every night and hold your pillow close. You are the last person on earth I could imagine dying. Mainly because you were bigger than life and loved life. I want you to know I forgive you for things I brought up to you often about our past. I appreciate that you apologized to me the night before you died, but why? Did you know you were going to die? When I look back at the last month before you passed, there are too many things you said or did that make me believe you knew this was coming. Not too many people get a second chance at life. You did and made up for so many years that I knew you felt disconnected from our children. You made that all right with them; each loves you so much.

I wish you were sitting next to me on our bed. I know you loved when I wrote in this blog. I really wish you had left more of your life experiences with the kids. You really didn't like to write things down. Lol, but I would give anything to have your journals. I read from your missionary journal that you only wrote for the first six months. What happened? I remember things you told me about your mission, but you didn't talk much about it. Did you think any of us would be disappointed in you? I hope you never felt that because the man I started dating over forty years ago was a man of God. I loved how humble you were. I saw that side of you again in the past year and a half. Heavenly Father is so happy with you. We all make mistakes, but the Atonement covers all of them. Every day, I am grateful that I married you. Not a moment goes by that I don't think about you. Save me a place. I cannot wait to see you again. I long for your fantastic hugs.

Grief

Dear Frenchie

My grief has not made me stronger, but it made me aware of all we had together. I have no choice but to learn how to function in the face of pure fear, bone-deep rage, and gut-wrenching sadness. You were my person, and now you're gone; I have no hugs, no kisses, and no "I love you" every day. I continue to pray every night for you and for our family to survive this incredible loss. I told you before, and I will continue to say, "I will NEVER get remarried." Not because I don't believe in intimacy or love, but because I could search the world repeatedly and NEVER find someone like you. You are and will always be THE BEST man for me. No one can compare.

Grief is a sadness that can only be known deep inside the devastated soul of the griever. It's this kind of despair that changes your entire life forever. I never knew how much I loved you until my heart was broken on that beach in Maui. I always thought we would have time to say, do, travel, laugh, and love more deeply. 

My entire universe was changed overnight. It's altered everything I thought I knew about myself and the world around me. And every day, I uncover more about what that even means. 

Sometimes, I feel you hold me at night like you used to. I have such a hard time sleeping, and I appreciate it when you quietly embrace me until I fall asleep. Thank you.

I realize that my feelings of grief change from day to day or even moment to moment. I will never forget you and what we shared together. Reflecting on our life together, we had much more romantic, fun vacations and everyday connections than most. 

Remember when it seemed like every one of our friends was getting divorced? That was a crazy time. But I loved that you and I always discussed those things and why people grow apart. We know why each of them broke up, and pride is a big part. Neither one could say sorry and really mean it. That was never worth an eternal marriage to you, and you fought for me to forgive you and move forward because, in the end, we made commitments to each other and promised our family would be eternal. I am so grateful for you and the man who made me a better wife and friend. 

I forgive you for putting me in positions where I felt forced to do things I didn't want to. I heard your apology, and I know how hard it was for you to say it with tears rolling down your cheeks in front of Jori and Dwight. But I promise I didn't tell them anything; your sincere apology put us all in tears. Your honesty and vulnerability were something I had never felt before, and it was an unforgettable moment. I will always hold that moment close to my heart. Only you and I know what that apology was for or what it meant to me. Thank you.

See you soon; I love you.

Monya

The Love of a Child

I have to tell my heart to beat again; I'm not sure I know how to do that without Frenchie. I love him so much. Getting used to being alone in this house is really hard. 

The evenings are the hardest. Eric and I used to kneel and pray every night together, and now he's gone, and I have to do this alone. This is the first time in my life that I have questioned my faith in God. It scares me. I cry all the time, I don't know if this is normal or not, but I'm feeling very alone. I can't ask God to return him; it hurts so bad that I wish I knew what to do.

Today, Blake, Haleigh, Brian, and I met with an attorney, Brian Holm. He wanted to talk to me alone first. I don't understand anything being said. It sounds like a Charlie Brown scene with the teacher talking, but Charlie only hears a garbled noise. I know the other side of fear is believing in myself and trusting in what I've been taught. Out of everything I've been through, this is by far the hardest. I just need to go through, feel, hate, be confused and believe I will see him again. 

When I was done listening to what the attorney said, we entered a conference room, and my children came inside. We all took our seats, and I began to ask questions. He answered every question. Then, my children asked questions, but my children already knew a lot of what he was trying to teach me. Wills, living wills, estate planning ...? I'm not supposed to know this stuff. I was going to die before Eric, and I don't care about his money, and what I own now is not anything I'm thinking about. My children are the only absolutes that I know; they are amazing. They are graceful; I could not have gotten through this meeting without them.

I told the attorney I was there to set up my will and trust for my children; this was the only way I could see honoring their dad, and I didn't want any confusion or hurt feelings with my children. I broke down and cried a little; it was so comforting to have Haleigh and Blake on both sides of me. They put their hands on my shoulders, and it felt so good. I have the best children on earth, of course, I've always been proud of them, but this is so hard on them, and they are trying to comfort me? I feel like, as their mother, I should cry alone so they don't see my weakness. The tears release my pain; if I have to dry my eyes and wipe my cheeks every day of the year, I will. This is not going away. 

After we finished with the attorney, Brian took me home. Easter is on Sunday, and I am not prepared, so I went to Target and got a few little things for my grandchildren. I also stopped by Kaitlyn's to give Flo her birthday present—a cute stuffed bunny. Archer and Phoenix opened the door; they were so sweet. I've missed them, and I'll take any little bit of love I can get from all of them right now. Florence came running to me ... "Bonbon is here," and she hugged me as I handed her the bunny. Phoenix approached her and said, "Florence, now you have more to add to your bunny collection." How sweet of him. Florence was a tender mercy I needed today. Holding her in my arms is a gift I will always treasure. She loved her Papa and said he was her best friend. It's always amazing to me how the spirit of children is so pure and authentic.

You're the MOM

     Eric brought me home from the hospital on the evening of Nov 19th. On Tuesday, the 29th of November, I drove him to the surgery center, just a mile from my house. I wasn't allowed to go back with him until he went into surgery like he always did with me. Before he returned, we hugged and said, "I love you; see you soon." 

    I went home, waiting for the surgery center to call and say all was fine, and I never heard from them. Eric called me and said the center decided to keep him one more night. They had been giving him fluids, but he could not go to the bathroom. I asked about his chest pain and if he still had acid reflux. He said yes, but they were giving him Prilosec. We talked until he fell asleep, and I said, "I love you too; see you soon."

    When he got home, his face was white; he said he was lightheaded, but he could not sit or lie down. We walked during the night, and I could see he was in pain. I ordered smoothies for both of us in the morning, and he said it made him feel better. I told him I had to get my blood taken and I'd be back in an hour. I asked him if he thought he would be okay if I left him for the tests. He told me to go and that he would be ok. I handed him his phone; his walker was next to his recliner, but he hadn't slept all night, so I asked him if he wanted half of something to help him sleep for a while. Looking back on this, I am not one to live with regrets, but this was the biggest regret of my life, I wish I'd never left him.

    I wasn't home in an hour; the doctor's receptionist told me I was late and that my appointment was at Thunderbird Mayo Clinic. This was not a close drive, I worried about leaving Eric, but went against my judgment and left for the appointment. My daughter Kayla went to check on Eric. Then she called me back to tell me she had called 911. I was already on my way home but could not drive fast enough, my heart was racing, and I was scared.

    I made it home with firetrucks, an ambulance, and one officer, and my heart was beating as they rushed him to the emergency room: Kayla drove me there. When they got oxygen on him, he said he felt much better. We were there for several hours, and his blood pressure was going too low, then too high. He was able to speak to us and was coherent. I called Clarence Schaub and Kyhl Powell and asked if they could bless Eric. He loves them, so he was happy when they arrived. Soon after that, Kayla came back, and the ER personnel said it would be better if I left and got some sleep because it would be a while for his room to be ready. Eric begged me to go home with someone else; I told him Kayla had brought me and would take me home but that I really didn't want to leave him like this, I didn't want this to be the last time I could talk to him. Eric assured me he was well cared for, I teared up saying, "I don't want this to be our last conversation." Eric told me to stop talking like that, he would be fine.

    At 2:36 am, I received a call saying they had intubated him, and he was in an induced medical coma, and now he was in the Heart Hospital next door, but there are strict visiting hours in the ICU. I could not go until 9:00 am and waiting for that long was challenging. The last thing I said before I came home from the ER was, I begged Eric to let me stay; he said, "No, you are still recovering, I love you, but I'm in good hands and feel better. I'll see you tomorrow," I said, "I love you."

        When I first looked at Eric, I cried. He looked so vulnerable, and I KNOW he was scared when he couldn't breathe. Someone from my family is always with him. 

    The cardiologist, Dr. Greene came into the waiting area and was trying to talk to me, but Kaitlyn kept asking questions and standing in front of me while trying to give me information about Eric. He finally asked who she was, she said she was his daughter and he told her he needed to talk to me as his wife and Power of Attorney. Dr. Greene told us that Eric's arteries were completely blocked and calcified. It was possible that Eric had been having many little heart attacks over the years, and obviously didn't know about it. The doctor tried to cut through it with three different scalpels but could not budge it. He told us we were keeping him on life support to see if he could wake on his own, but if he came out of the coma and could breathe on his own, he had a long road ahead of him. I tried so hard to keep my emotions to myself but felt like I was not being respected by my children, Kaitlyn was rolling her eyes at every question I had for the doctor. She has had a problem with me for a few years, and I lost control of my emotions. I asked why she rolled her eyes at me, and her answer was "I roll my eyes at everyone." I continued in a harsh manner to ask her why she didn't like me, and why she was so mean to me. It started a horrible loud argument. The doctor could not tell us my husband who I have been with for over 40 years would make it through the night. It scared me so badly; Eric and I have always trusted each other but we have never discussed his investments. I knew about insurance and investments he and I had invested together, but I knew there were investments he made, and I did not want to lose anything Eric had worked on and loved so much, Eric is all about buying low and selling high.  My oldest daughter Kayla, said, "I can't believe you are worried about money when your husband could be dying. All you care about is Dad's money." ' I told her I know exactly how much money I will get from insurance Dad has always been good about keeping that up to date. From early in our marriage until now. I was talking about his investments and not knowing how to take care of any of that. How could she say something like that, my husband may be her Dad but she has no idea what goes through a woman's head when she thinks her husband is going to die. 

      It is now December, and I am hopeful Eric will make it through this and that even if we have to celebrate in the hospital I would, because this is his favorite time of year. When I'd get home at night there were always boxes from Amazon to bring in. I was trying to be aware of those to make sure each one of our grandchildren got a bean bag for themselves Dad and I thought that would be an easy gift and that the children would love it. When I opened them, I realized two were going to be too little for Recker and Ezra and I needed to return these and get bigger chairs for them. I had one day to do that so it would get to my house by Christmas. Then the next day I thought it would be a better day with Eric and with my children, but I was wrong. 

      I whispered to Eric how much I needed him and that I knew he was with his mom and dad, but not to get too comfortable up there because his family needed him, and that he and I still have a lot of life together. I played some songs from my phone quietly next to his ear. "I don't think I can do life without you, please come back to me."     

     In the waiting room was another story, I tried to be less combative but when Kaitlyn pulled her shirt over and said to me, "Look Mom, I don't have any garments on." She was trying to get a rise out of me. I said to her, "And...?" Why would I care if she had garments on? I knew she was trying to start something, so I said to her, "Why do you hate me so much?" Wrong question, I heard everything I have ever done wrong to her. Then I told her how she had hurt me too. This started an argument, Kayla told me, "But you're the mom." I wish I had a nickel every time I've heard that from her. Now I've heard it from all my girls. 

     Does that mean, my children are allowed to hurt my feelings, and be disrespectful and unkind just because I am their mother?  Kayla told me she is Autistic, and that one threw me for a loop as her mother I wondered why I didn't know about this when she was younger. I wanted to know what her doctor told her, and she blew up at me, she said, "So you think I'm lying? I don't have to show you my medical records." Because there is a lack of communication within our family I had no idea why she would be so angry, she was a mother of three boys, one with severe nonverbal Autism and one on the spectrum but he is high functioning. After that argument, I didn't hear from her for a year. When we finally did talk to me she tried to tell me how I was supposed to talk to her now. Okay, I agree with boundaries, but this was more than that, I was supposed to learn a whole new way of speaking to her after 34 years? Overnight, I was expected to speak to her as she requested. Dad and I talked about it and she had never said a word to him, he could speak to her like we always have. Why is he not held to a higher level? Because I'm the mom? She also said to me, "I was abused by someone, and it was in your home?" Very accusatory, I asked where? She said in our house in the Islands, when I asked who it was, she said "It is none of your business." Wow, I wonder if someday, God forbid, she finds out Recker was abused by a respite worker. When I watched him while she worked and she accused me of sexually abusing Recker, seriously? What is wrong with her? I would never touch one of my grandchildren or any child in that way EVER. It was then that I was no longer allowed to watch any of her children. That hurt me so badly, and Dad was angry too of all people in the world why in the hell would she think I would do such an evil thing to my grandchild? After that event, I wouldn't want to be alone with her children for fear she would turn me into CPS for something she 'thought' was real. 

     Back in the hospital waiting room, I decided after Blake started yelling at me that it was time for me to calm down and stay away from Kaitlyn, well actually all my children. Blake and my relationship has always been different than what I had with the girls of course they think he's always been my favorite. I said nothing to him. I know him, he can be as mad at me as he can and it's over, he tells me when I'm out of line, forgiveness is given on both our parts and it's over. My mom said that was exactly how I was growing up. These millennials have a new way of communicating and if it doesn't go their way, even if you are their mom, they are done with you. Kicked me out of their life like a piece of trash. 

     I spent some more time with Eric and then went home. I was crushed again just because I'm the mom. Why couldn't they say, "Mom that really hurt when you said ......" Then we could work on that? Why wait years and years to bring up things I don't even remember as a mother. I don't care what they think I was a good mother, and I am an excellent grandmother. I showed up at the hospital in the morning and all my kids were there, Kayla and Kaitlyn came back from visiting their dad and they said the nurses were doing something so no one could go back for an hour and a half. I watched as they ignored me but were perfectly had to order the right beanbags today. Kayla once again, thinking of herself, turned to me and said, "I can't believe your husband is dying and you are asking about Christmas. I can't talk to you. And I've told you how to speak to me." HUH? I just didn't want her children to be the only ones without a beanbag big enough for them. I guess because I'm the mom, It's not okay to ask questions about Christmas gifts that would have surely hurt their feelings if they got nothing, but it's okay when your dad is dying to be laughing at TIK TOK.

        I stood up to go see Eric and my girls blocked me saying, "Dad doesn't want you here, he said you are trying to kill him." I knew there was no way he said that, we may not be the perfect examples of parents, but Eric and I are in love and have been together for over 40 years. WTF was going on, I just knew Kayla and Kaitlyn had something to do with this, they would hurt me that much to get back at me ... just because I'm the mom. I was so embarrassed I ran to the EXIT to leave, and Haleigh followed me, she said, "Mom do you trust me?" My mind was all over the place. I had no idea what I said to her, but I do trust her. Haleigh is quieter in nature than any of the other children. Haleigh has been through the most with me. She helped take care of me when I was so sick during chemo and radiation, I will always be grateful to her, I ruined her senior year of HS.   

     The next day I came back, and the ICU guard told me I was not allowed in the hospital, that patients were at risk with me there, and especially my husband who thought I wanted to kill him. I said, "I am his POA, I would never hurt him EVER. Who put my name on this list?" She looked at me and said, "Kaitlyn, she is now his POA."   

     I was escorted out by security and asked not to come back. I was crying hysterically, and when I was walking to my car I looked up and saw my children watching me walk to my car.

     So now, I went home and waited for word about my husband but still would not be allowed in the hospital let alone ICU. I was hurt worse than I ever have been and what's worse I knew they didn't care. Blake came by the house that night ringing the doorbell banding on doors wanting to talk to me, but I couldn't, I was in shock still just staring around not knowing what to do next. I'm sorry Blake, I was in a whirlwind of emotions and did not know what to believe. 

      When Eric woke up, Blake called me, told me, and said he would be leaving for a rehab facility in a few days. I asked him if Dad had asked about me, and he said, "No, but you called me while I was in Eric's room and excused himself. When I came back in the room all he had to say was 'Was that mom?' I told him yes, and all he said was "Is she mad?" 

     He was awake and didn't want to know about me? It just didn't seem right, but my kids were in charge and taking over my marriage right before my eyes. I had no idea why he said what he said, I thought he was under life support. Now he's awake and it was obvious that I was not included in any choices about his care. After a couple of months, Haleigh called and wanted to know if Scott and Brian could come over and get his bed for where he was moving. I told her no if he wanted anything from the house, he needed to call me himself.

     And he did within five minutes. I told him unless he talked to me my divorce attorney had said nothing was to be removed from the house, which was no problem because that night someone tried to break in. The next day I went to Home Depot and took a quick course from one of the workers on what the best lock was and how to install them. 

    I told him I spoke with his financial planner that Eric always had me in mind when he made any investments and that it was better under these circumstances for me to take care of as much as I could now. I cried myself to sleep every night, and not once slept in the bed he and I shared.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             

    When I sat at home alone, I thought about how we didn't have a will written since my first daughter was born; I wasn't worried about money. He and I have discussed the insurance each of us would get if the other passed. But one thing we have never really talked about was his investments. I knew he had many, all with my name on them. Eric loves selling; his passion is getting a deal on the property, then turning around and making twice as much. I tried to explain to my kids I know the insurance policy on myself, my kids, and grandchildren-they will be taken care of. But they seemed angry at me for talking about dad's money; I told them this isn't about money. I have yet to learn about his investments. I've just always trusted him as a businessman. He never had to ask me about investments because I knew he wouldn't buy anything unless he knew we'd make money on it.

XOXO Monya BonBon

Meningitis

Eric took this at just the right moment.

    I'm on vacation as of 10 minutes ago. Eric is so excited about going away for a few days, as am I. We arrived at our condo in Mexico around 4:00pm. The weather was refreshing with a slight breeze from the ocean. The resort was quiet, and most importantly we found a great parking spot, Eric is having his second hip replaced on Tuesday, and we will have a few days to enjoy being together. Lately I've been so busy trying to finish "Pebbles in my Pocket," learning to let go of the things you can't control." and the "Happiness Junkie, #KindnessMatters. We haven't had much time together and we wanted time away.

          He rarely complains, but since his last surgery, he has had terrible acid reflexes that sound like they hurt. He said it hurt his chest. We stayed in the condominium but had so much fun lying on the sofa watching movies and keeping up on the Local Government election. We ate popcorn, snacks, and sandwiches for dinner, and then we went out.

           We had intimate conversations about the trials we have had and how after 40+ years we have served one another, forgiven one another, and learned more about each other, as far as our wants and needs we began writing our goals for 2023. We talked about our children, each one of them. Eric and I did our best to raise four responsible adults. Now it is their time to live the life they want and what makes them happy.

        We are both looking toward retirement and have written our goals for the next five years. He is so excited to start building our home in Mexico and selling a few condos, and then He surprised me with the layout of the house in Mexico and wanted to know my advice. Together we changed a few things, like bedroom sizes, bathroom placement, etc.

        On Monday, I woke up unable to balance, I ran into walls, and my right eye looked infected and bright red. I had a migraine like I've never had and eventually started having some hallucinations, people looked short, fat, and pregnant, even the men. I took a migraine medicine to hopefully help the pain as we drove from Mexico to the Mayo Clinic. On the way home, I spoke with Dr. Lettieri since it looked like it was an eye infection. I asked if we should come to County Hospital or Mayo Clinic. He said Mayo since the Maricopa Hospital does not have an ophthalmologist in the ER. then asked Eric to text him with an update from Mayo Clinic.

        In the Emergency Room, I was taken for a CT scan, lots of drug testing, and ordered an MRI. By now, my hallucinations were constant with my eyes open or closed. I could not take any pain medication because they did not want to alter the results, and medicines can do that. I was given a spinal tap, and I thought about my youngest granddaughter Florence, she has spina bifida, and I wondered how many times in her life she would have to do this. It helped me to stay still so the doctor could do this spinal tap quickly.

        I didn't get to my room until around 3:00 a.m. I texted Dr. Lettieri knowing he would be up and getting ready for work. Dr. Lettieri was in surgery at Mayo when I updated him. He came from surgery to check on me. He knows my story from the beginning to now. He found out who my Neurosurgeon was on duty and gave him the background. He told my neuro team this had nothing to do with my eye. Eric and I love Dr. Lettieri, Eric is always saying how lucky we are to have him on speed dial as we have had to use him several times. The Neurosurgeon respects Dr. Lettieri and was glad he called him so they could eliminate the eye as the main reason for the migraine and hallucinations.

        That night they took me in for the MRI around 10:00 pm. I asked Eric to go home, it's a long ride for him, and I wanted him to get home safely. He didn't want to leave, but I knew his hip was hurting, and he needed rest.

        The MRI was less than a fun time, I had to wear a mask in a tube that was already claustrophobic. It really scared me, so I closed my eyes and suffered through it. When they pulled me out to administer the contrast and dye. I asked if I could take off the mask, and the technician said since I did not move a muscle during the first round, it was okay for me to keep the mask off and it made an enormous difference. The pounding on my migraine made me throw up several times back to my room, and for the next couple of days...still had no pain medicine.

        Dr. Hasan, who is on my neurologist team, came into my room with Kayla and Eric, she finally had a diagnosis, I had viral meningitis. The swelling between my brain and the lining of the brain was infected and swollen, and this was what the hallucinations were coming from. Kaitlyn once again debated with a neurosurgeon through our family text. I did not have my phone, but Eric was reading it to me. Since Florence has spina bifida, she said the spinal fluid would not explain the slurred speech and hallucinations. It really hurt when Eric read that to me, A nurse happened to be in the room and then told my neurology team what she heard. She also heard me ask Eric if he thinks they all think I'm crazy, and he answered, "Yes."

            Dr. Hasan came to my bedside after Eric and Kayla left for the night. She held my hand and said the nurse told her about the conversation. She said, "I don't care if your family thinks you're crazy; you tell them what is happening to you, and the things you see are as real as they can be." Dr. Hassan said it is normal, and they've seen it before with meningitis patients. I thanked her for telling me this was normal. They ran every street drug test they could and knew I was not on drugs or that no alcohol use had happened. When the surgeon came in, he said Dr. Lettieri told him what was happening had nothing to do with any of the surgeries he had done. I also asked him to read the family text thread and tell me how to answer my daughter without causing more problems. His answer was, "I didn't get my degree from Google." I realized he read it the way I did like she doubted me without me saying anything about the contention this daughter has had about me for years. I decided it was not worth addressing, so I let it go. I just want peace and love in our family. But I was glad to know she was checking on me, I really think she doesn't like me.

        I felt like I couldn't get anyone to believe what I was seeing on the walls, ceiling, and floors. I asked Eric "Do you think the doctors think I'm crazy?" and he said, "I'm pretty sure they do, but I've known you longer than anyone. This is not normal behavior for you and yes, I believe you."

        The neurologist explained to me that from the spinal tap, they did the first night, they knew it was meningitis. Then they grew cultures from the fluid of the spine. I was told after the MRI my brain looked 'beautiful', and the infection was not in my eye it was in the brain area. They told me Meningitis is either Bacterial or Viral, one not worse than the other, simply different procedures to treat. If someone comes into the ER with bacterial Meningitis, they send them home with antibiotics. When it is Viral, they must first find out the source of where it is coming from, which showed in between the brain lining and the brain, for it can take 10 days to clear up, but they've seen three months of recovery. They said I could not return to work when I was released. I spent most of my vacation in the hospital.

I took another 13 days for MLOA from American Airlines. I'm nervous about Eric's surgery tomorrow. Since his first hip surgery in August, he's had chest pains and horrible acid reflexes. 

He has cared for me as my caregiver for so long, and now I will have a chance to serve him when he comes home tomorrow.

XOXO Monya Bonbon

Hopes and dreams with Dr. Sal Lettieri

 

SATURDAY, AUGUST 1, 2015

Hopes and Dreams with Dr. Sal Lettieri

This time 6 years ago I waited anxiously for a negative diagnosis of cancer.  Not receiving the news I was expecting, looking back on this journey I've been on I realize I am being prepared. For what? That I can't answer, I'm not sure I want to know.  I would be lying if I said I have not had days when I want to crawl up in my bed, close my eyes, and not wake up.  I have felt unmeasurable pain, physical, mental, and spiritual.  I think we all want to believe we are "strong" If I had a dime for every time someone has told me how "strong" I am in the past 6 years, I'd be a rich woman. I'm grateful to those people.  So many times I have prayed for a miracle and felt abandoned. Now that I've cried enough tears to fill a swimming pool I trust in Him.  So many of us have a hard time recognizing the blessings that come in disguise of a trial.

The funny thing about that is, I am a rich woman. Not in a monetary way, but I am richer in the strength of who I am. I've been forced to live my life with loneliness, hardships, and pain. What if I had not experienced these things?  Where would I be now? Who would I be?  He has bigger and better plans for me. I am in the midst of fulfilling commitments and I know He will keep His promises to me. I will serve others, and be happy with whatever circumstances come my way.

I have had to learn to challenge my thinking and to lean on a positive environment of people.  I'm trying to learn how to balance my life.  Work, family, Nerium, Mayo Clinic, friends, personal development, and daily intentional goals have helped me to keep focused on what is most important.  I've had to be brave in circumstances where others don't understand or actually don't have the capacity to understand what this past year has done for me. Just when I thought I could never look myself in the mirror again, I became brave I let it define and refine me.  I learned that my face is not who I am.  I can't say I have fully embraced the idea of a partially paralyzed face.

A year ago I read a book that changed my life and added value to who I am, I will forever be grateful for having the knowledge before I read it, that I am a beloved woman of God. If not for having that testimony I probably would not have been able to make effective choices,. I've learned your thoughts either serve your growth or serve your decline. It's been proven we make an average of 90,000 thoughts every day. I've always been a journal writer, and a reader and I love good uplifting Christian music so when I read The Slight Edge by Jeff Olson, I was like a sponge. I can attest to the power of words but as a child words were usually to my detriment. The Slight Edge convinced and reconfirmed to me I have been led and whispered to by the spirit all these years, I'm exactly where I am supposed to be in my life.

Humility is a word I probably would have never used to describe myself 6 years ago. I'm progressing by studying everything I can get my hands on. While studying I often think of all the people who have touched my life. Who I think are a true example of humility. Not one of these people knows they are humble, isn't that interesting? It is who they are, an attribute they have mastered without knowing they have. Some of these people have had devastating events happen in their lives and learned to control their thoughts and actions to mirror match a Christlike attitude. Others seem to not have had any apparent significant trials in their lives. They surround themselves or have been surrounded by proactive people who have built them up, and showed them compassion and unconditional love. The attribute of Humility is such a blessing, and not easy to accomplish.

During my reading of the Slight Edge and studying scriptures, I am finally able to say I believe in the power of the brain and how our thoughts, positive or negative can affect everything. I made the choice to look at myself in the mirror every day and say "You will smile someday" It's been over a year, and I've had 3 doctors tell me I will never smile again, I will never have facial movement on the right side of my face. I'm glad to report not all doctors are in charge of the outcome of a positive mental attitude. Dr. Lettieri told me I would smile again. He has encouraged me to continue to work that muscle.  Every morning for a year I tell myself over and over again "I will smile again" and then I tell my brain to tell my mouth to move. Dr. Lettieri has never given up on me, he has never said "You Can't or you Won't" It sometimes requires a surgical procedure but I am slowly but surely starting to tell my brain to simultaneously smile when I tell it to. It's working, I am reaping the rewards of my daily affirmations. It's a slight smile, but what's more important is realizing, just like reading from a good book every day, kneeling to pray every day, having faith all things I've done all my life are things I have mastered by doing them receptively. Those things are a part of who I am, If I stopped doing those things it would be like not brushing my teeth every day, eventually they would rot. It really has been such a slight change, but adding it to my daily routine has strengthened not only my brain and facial muscle but also led me to believe an arrow could be shot at me and I could repel it.

I am endeared to Dr. Lettieri, and to Heather Lucas. She has seen me through so much.  I miss Dr. Kreymerman and wish he was here to see my progress. Dr. Lettieri has now been renamed as my "smile doctor."

He said I would, I said I could and I am making progress. I am beginning to dream again, to have hope for my future. Prayer is the greatest miracle in my life when burdens have weighed me down, prayer from so many people has helped me to believe in myself again.  Putting my faith in Him I believe I have even greater miracles to come. He could take away all of this but His plan is perfect in every way. These trials are refining me into the woman I've always dreamed of being.

The Price of Beauty

FRIDAY, MAY 1, 2015

The Price of Beauty

I was recently at a training in Canada, as I religiously took notes I suddenly was struck with shock when I heard Mark (the trainer) tell a story about how much women pay for their beauty products.  I heard laughing from the audience, but I was in another world.  I was having an outer body experience. What is the price we pay for beauty?  I'm not talking about a monetary price, as Mark was humorously entertaining us with.
I had an ah ha moment, I wrote: Mark said, "believe me guys, there is a price for beauty...."
I immediately wrote down "For me, what I have learned about beauty from Nerium this past year is Priceless" My face is disfigured, it will never be the same.  I want that so badly, I want to look at someone and smile, smile BIG.  I want to show my teeth.  I can't believe I took my smile for granted.  Just like I took my hair for granted, the feeling in breasts for granted, being able to run and train for granted, I could go on and on..... I simply took everything in life for granted.
I cannot honestly say any of this is understandable, nor has it been easy.  I may not always please people with my honesty and truthfulness, however I know the Lord has gotten me through these past few years.  I have been refined, not defined by Him who loves me just as I am.  In my quiet time, when I spend thinking and pondering over why so much in my life has been hard there have been times I've truly wanted to crawl in a hole and die--I've wondered if anyone would even miss me, lost sometimes in despair.
Then suddenly my heart is filled with more love and an overwhelming feeling of His arms around me, pulling me up through that dark and empty hole into the light again.
I lived for so long not caring about others, not caring even about where I was going or where I should be.  I now know my life was intentionally and most humbly prepared for me before I even came to earth.  His grace has gotten me through enormously unbelievable circumstances.  Because I know He has made promises to me if I am righteous and obedient I will continue trying to live as He wants me to.  I will share Hope and Faith with others, I know the Lord will use me, he will lead and guide me to people who are in need.  This life for me is no longer about beauty on the outside, I ask Him to help me not turn from pain and to give me strength and compassion to help others who are climbing an uphill battle.
We all want to feel beautiful, external beauty, I know this because I have been that person.  There are still glimpses I take in the mirror that horrify me.  When I am weak, I know I have to move forward, never go back, never give up.  I am putting all my faith in unseen strong hands that I have felt comfort me and pull me to a higher ground.  I love that feeling, knowing He is watching over me, He knows me, He feels my pain and He understands my journey on this earth is not quite over.
Physically I am tired, my body aches my heart is full and yet I want to fight because I know there are so many more miracles to come to others from Him through me.  I don't feel comfortable sharing those sacred moments the Lord has so gracefully revealed to me I have more work to do before it is my time to go live with Him again.  He has lifted my burdens on so many occasions when I have wanted to give up.  When Sheldon died, one of those special moments came.  I truly miss him, and visit his graveside often. I'm not sure why, I haven't visited anyone's grave as much as his but I feel a peace there. I will never forget him telling me I looked beautiful when I was bald.  Eric tells me I'm beautiful everyday, he is so kind in that way and I appreciate it so much, but the day Sheldon said those words to me, it meant something different.  He stood there pale faced and bald himself and yet for some reason those words penetrated my heart like no one else ever has. Maybe because I trusted he knew how I was feeling, not just using "words" to succor the needy.
Every bit of the worlds definition of physical beauty has been taken from me.  So yes, there is a price to pay for physical beauty, but for me what I have learned about pure unconditional love and beauty in His eyes is priceless.

• Shannon and Doran

  Seeing growth

  1 year ago
• Haleigh and Scott Bigelow

  Memorial weekend

  9 years ago
• Courtney and Justen

  You can call him Doctor.

  10 years ago

Have Courage and Be Kind

 

SUNDAY, APRIL 19, 2015

Have Courage and Be Kind

What an unbelievable week I’ve enjoyed. Renee Olson (Chief Leadership Officer for Nerium International) asked me to speak at Nerium’s semi-annual national convention. It was held at the SAP Center in San Jose, with a crowd of thousands of people sold out. I was hesitant to follow through with this great honor. I am so transparent in what I do, but I often do not allow others to see the delicate, emotional roller coaster I’ve endured. The aches have been natural for me. The weight of this responsibility became so heavy knowing my face would be on substantial jumbo screens for all to see gave me tremendous anxiety. This past year, there have been times I’ve just wanted to hide. Hearing an innocent child asking their parent, “Mom, what’s wrong with that lady's face?” has been challenging to process. Usually, I reply before the mother or father has a chance, “I just have a boo boo” The parents apologize generally and walk off, saying they are sorry. That is my reality; that has been my life for a year now. I realize no one can utterly understand my feelings, so I usually just say, “I’m fine,” when my heart is weak, struggling to be brave and strong. Just when I’ve started to heal and feel like life is taking a turn, another trial comes. I was so amazed while I poured out all my feelings; I felt loved. I prayed for the right words to say. This peace came over me before I went out on stage. I really opened and let Him guide me. I could not read my notes, resisted putting on my glasses to read them, and had to condense 5 and a half years into 10 minutes--I knew there was no way I could convey all the emotions we’ve lived through in that amount of time. Before I went out, I decided I would meet Him where He needed me to be, and this would bring me into a full circle and heal my insecurities. This experience helped me to be one step closer to being whole again. I prayed that whatever I said would touch at least one person and help them understand that we all feel broken in some way or another, but not giving up is the secret power we all have inside of us. We all want to feel valued and important; I’ve learned this through living it personally.

For those who have followed my blog, I don’t talk much about Nerium because I didn’t want my blog to become a platform for advertising. This is a sacred place where I go to escape the world; I am alone and listen to uplifting music when I write. I’ve always wanted this to be an authentic reality of who I am. My children will be able to go to this place long after I am gone to laugh, cry, and remember who their mom was. With that being said, I do have to add that I know Heavenly Father undoubtedly led me to this incredible company. I was not looking for anything; still involved heavily in health issues. The confirmation I felt when I said yes to Nerium was so overwhelming at the time I didn’t know why. Now I do; within a few months of joining my friends, my facial paralysis happened. If it were not for the self-development, I’ve gained from living in the culture of the Nerium Family, I don’t think I could have made it through this past year. I highly recommend anyone to READ THE SLIGHT EDGE. It has Nothing to do with Nerium; it has to do with a philosophy of life. Even through my breast cancer journey, losing my hair, uterus, and breasts, I still felt okay. My perspective on life has changed; Nothing in life is worth anger, hate, or malice. Seeing the world through different eyes lightened my heart and soul.

The Villain had taken from me everything that the world defines as “feminine.” It was challenging to process, and I relied on the Lord to get me through it. However, when the facial paralysis came, and a doctor told me, “Your face will never be the same again,” those words penetrated my mind deeply. I cried; my husband called for me. I was depressed and sad; I took so much of it out on my family and never wanted to be seen in public again. It has been a slow process that I cannot say I have fully conquered. Still, I can honestly say without hesitation nowhere, except for my church congregation and family, have I felt true unconditional love like I have with the Nerium family. Jeff Olson has taught me true happiness begins from the inside and manifests itself to others when you are genuine with your thoughts and feelings yourself. Success is not a car or a home. So many people think, “Well, when I lose weight, or I get a new job, or I blah blah blah......I will be happy.” Nothing can be further from the truth; being authentic and happy with yourself under any circumstance is what success is; it’s what attracts people to you and helped me live through this year. Be patient with me; I’m still under construction.

Speaking in front of a sold-out stadium--um. overwhelming
I had to lean on the spirit and speak from the heart.

Nerium and CEO Jeff Olson know how to throw a
white party--so much fun

It was a badge of courage and bravery for me to expose myself to such a large group of people. Over the past few weeks, as I traced where I’ve been, it was overwhelming even for me to process my journey. I have wrestled with shame and discouragement, feeling like I have let people down. I’ve wondered at times if my own children are disappointed in me. This life-changing alteration in my life has really brought me to my knees. Starting anything is always challenging: a diet, an exercise program, a new job, and even a new life. Trusting in myself to fight through this last year has been empowering. It’s been worth the sorrow and pain I’ve felt and feel. As I give up my pride and begin to give in to the fact this is the life I intend to live, I’m starting to believe I can move mountains. I have felt the changes inside of me. I’m beginning to realize I’m me because of where I’ve been and the experiences I’ve enjoyed and endured.

When Sheldon died, I wanted to give in and give up; now, I see the Lord has been waiting for me to do my part. To fulfill a promise. I’m finally beginning to understand I don’t need all the answers right now. It’s never too late to start on a path that will move you forward. Step up to the starting line and run as fast as you can; tomorrow may not come. This is the time to love others, share a kind word, and be true to yourself. You will find the strength to pull yourself out of any situation. There are days when I have to remind myself of who I am and convince myself once again I have the power within me to be happy. True happiness cannot be given to you, it cannot be bought, and it certainly cannot be faked. When you are pleased, you live with no regrets, you are at peace with who you are, and most of all, your spirit illuminates and becomes contagiously beautiful.

Tonight, Eric and I went to see the latest version of the animated Disney movie Cinderella. As I watched, I was engulfed in the story; many paralyzed my life. It showed me the unparalleled beauty of courage and kindness in the face of humiliation, suffering, and shame. I watched, thinking, sure, Cinderella looks stunning. But it’s not her ball gown or glass slippers that first catch the prince’s eye. Her inner beauty captures his attention—her courage and her kindness. Kindness isn’t a weakness; it’s a strength. Submission isn’t pitiful; it’s beautiful and courageous. We all have the power within ourselves to make our lives happy; it is a CHOICE.

Hilary Weeks My New BFF

 

SATURDAY, APRIL 18, 2015

Hilary Weeks, my new BFF

Lunch with Hilary-😘

A few months ago, Hilary Weeks emailed me to schedule a time to meet and go to lunch. With so much going on, it was easier to make that happen now.

Everyone knows I fly for free, so I got on a plane, flew to Utah stayed with one of my oldest and dearest friends Teri Padovich. We had so much fun catching up, laughing, actually laughing a lot. We talked a lot. We haven't seen each other for so long. I was a little worried about her reaction to my face. She didn't skip a beat; we hugged and went off. It was like old times; I needed this time away from Arizona.

While Teri was working, I met Hilary for lunch; good thing I knew what she looked like because we hadn't at that point exchanged phone numbers. I knew I was supposed to meet her in Harvest restaurant at Thanksgiving Point. I immediately recognized her and apologized for being late; those GPSs don't always give the correct directions.

I have to say, meeting Hilary was excellent for me; what a ray of light she gives out. Her spirit is inspirational; I could feel her sincerity. It's rare to find people you can truly connect with on a spiritual level. It felt like we'd been friends forever; she was beautiful inside and out. Just as I love the Live Happy campaign, Hilary has her own called Live Positive. You are truly missing out if you still need to get the app on your phone. Keep track of happy thoughts,  type journal entries, make goals, and earn inspirational quotes. You can even form groups of people to do it with.

I loved talking with Hilary; she has 4 daughters and met her husband while he was on his mission in Alaska --she thought Elder Weeks was pretty cute and pretty inspirational himself. A few years later, she was walking on the BYU campus when she saw him for the 1st time since Alaska. She said she yelled, "Elder Weeks" He turned, saw her, and ditched his friends; the rest is history. I love her music, I've heard her speak, and my heart has been drawn to her for so many reasons. Now I know why. She is so positive, loves her family, and has a burning desire to improve the world.

After lunch, we exchanged phone numbers, and to my surprise, she texted me and invited me to attend the Women's broadcast with her and 3 of her daughters. Teri dropped me off at Hilary's house. I met her daughter and her husband (Elder Weeks). What a great family.

I love these cute girls....❤️👀

Sitting in the woman's broadcast with Hilary and her girls was fun. When it came time to sing, my instinct was to pick up the hymn book and sing. Suddenly, I realized I was sitting next to Hilary Weeks. Her music has inspired me and helped me through some incredibly rough times...this was really surreal. I wanted to close my eyes and listen to her voice sing. Janice Kapp Perry was also in the congregation--I was surrounded by inspiration.

 Of course, I wished my daughters could have been with us too.  I am an avid note taker. I have stacks of journals and notepads full of the notes I have taken from special talks and thoughts I spontaneously have while visiting Mayo Clinic. Some of the most important life lessons I've learned are written down and journaled. I sometimes go back and review them, and often I am so surprised at the words I have written. How easy it is sometimes to forget the lessons we learn at poignant times of our life. I'm so grateful for having those detailed memories to look back on. This visit with Hilary and her family will always be one of those memories. The Lord has truly blessed me with good people in my life. Hilary and I will be forever friends now.  

This is truly a beautiful woman inside and out.

Notes from Conference