Hopes and dreams with Dr. Sal Lettieri

 

SATURDAY, AUGUST 1, 2015

Hopes and Dreams with Dr. Sal Lettieri

This time 6 years ago I waited anxiously for a negative diagnosis of cancer.  Not receiving the news I was expecting, looking back on this journey I've been on I realize I am being prepared. For what? That I can't answer, I'm not sure I want to know.  I would be lying if I said I have not had days when I want to crawl up in my bed, close my eyes, and not wake up.  I have felt unmeasurable pain, physical, mental, and spiritual.  I think we all want to believe we are "strong" If I had a dime for every time someone has told me how "strong" I am in the past 6 years, I'd be a rich woman. I'm grateful to those people.  So many times I have prayed for a miracle and felt abandoned. Now that I've cried enough tears to fill a swimming pool I trust in Him.  So many of us have a hard time recognizing the blessings that come in disguise of a trial.

The funny thing about that is, I am a rich woman. Not in a monetary way, but I am richer in the strength of who I am. I've been forced to live my life with loneliness, hardships, and pain. What if I had not experienced these things?  Where would I be now? Who would I be?  He has bigger and better plans for me. I am in the midst of fulfilling commitments and I know He will keep His promises to me. I will serve others, and be happy with whatever circumstances come my way.

I have had to learn to challenge my thinking and to lean on a positive environment of people.  I'm trying to learn how to balance my life.  Work, family, Nerium, Mayo Clinic, friends, personal development, and daily intentional goals have helped me to keep focused on what is most important.  I've had to be brave in circumstances where others don't understand or actually don't have the capacity to understand what this past year has done for me. Just when I thought I could never look myself in the mirror again, I became brave I let it define and refine me.  I learned that my face is not who I am.  I can't say I have fully embraced the idea of a partially paralyzed face.

A year ago I read a book that changed my life and added value to who I am, I will forever be grateful for having the knowledge before I read it, that I am a beloved woman of God. If not for having that testimony I probably would not have been able to make effective choices,. I've learned your thoughts either serve your growth or serve your decline. It's been proven we make an average of 90,000 thoughts every day. I've always been a journal writer, and a reader and I love good uplifting Christian music so when I read The Slight Edge by Jeff Olson, I was like a sponge. I can attest to the power of words but as a child words were usually to my detriment. The Slight Edge convinced and reconfirmed to me I have been led and whispered to by the spirit all these years, I'm exactly where I am supposed to be in my life.

Humility is a word I probably would have never used to describe myself 6 years ago. I'm progressing by studying everything I can get my hands on. While studying I often think of all the people who have touched my life. Who I think are a true example of humility. Not one of these people knows they are humble, isn't that interesting? It is who they are, an attribute they have mastered without knowing they have. Some of these people have had devastating events happen in their lives and learned to control their thoughts and actions to mirror match a Christlike attitude. Others seem to not have had any apparent significant trials in their lives. They surround themselves or have been surrounded by proactive people who have built them up, and showed them compassion and unconditional love. The attribute of Humility is such a blessing, and not easy to accomplish.

During my reading of the Slight Edge and studying scriptures, I am finally able to say I believe in the power of the brain and how our thoughts, positive or negative can affect everything. I made the choice to look at myself in the mirror every day and say "You will smile someday" It's been over a year, and I've had 3 doctors tell me I will never smile again, I will never have facial movement on the right side of my face. I'm glad to report not all doctors are in charge of the outcome of a positive mental attitude. Dr. Lettieri told me I would smile again. He has encouraged me to continue to work that muscle.  Every morning for a year I tell myself over and over again "I will smile again" and then I tell my brain to tell my mouth to move. Dr. Lettieri has never given up on me, he has never said "You Can't or you Won't" It sometimes requires a surgical procedure but I am slowly but surely starting to tell my brain to simultaneously smile when I tell it to. It's working, I am reaping the rewards of my daily affirmations. It's a slight smile, but what's more important is realizing, just like reading from a good book every day, kneeling to pray every day, having faith all things I've done all my life are things I have mastered by doing them receptively. Those things are a part of who I am, If I stopped doing those things it would be like not brushing my teeth every day, eventually they would rot. It really has been such a slight change, but adding it to my daily routine has strengthened not only my brain and facial muscle but also led me to believe an arrow could be shot at me and I could repel it.

I am endeared to Dr. Lettieri, and to Heather Lucas. She has seen me through so much.  I miss Dr. Kreymerman and wish he was here to see my progress. Dr. Lettieri has now been renamed as my "smile doctor."

He said I would, I said I could and I am making progress. I am beginning to dream again, to have hope for my future. Prayer is the greatest miracle in my life when burdens have weighed me down, prayer from so many people has helped me to believe in myself again.  Putting my faith in Him I believe I have even greater miracles to come. He could take away all of this but His plan is perfect in every way. These trials are refining me into the woman I've always dreamed of being.

Begging VS. Believing

 

FRIDAY, JANUARY 30, 2015

Begging vs. Believing

When Haleigh was about 13 years old, she asked Eric, "Dad, when I get my driver's license will you buy me a car?"  Eric said, "Yes, we will have a car for you to drive" I remember this because I told Eric, "I wish you wouldn't have promised her a car; we will have to hear about it for 3 years now. What if our situation changes and you can't keep your promise?"  Eric looked at me and said, "I always keep my promises" I dreaded having to listen to Haleigh constantly ask about that car. To my surprise, she never asked again; she talked about how happy she was about the prospect of her driver's license and freedom, but she never asked about the car again.

I have often thought about that. Eric was so confident he could provide a car for her to drive that he felt comfortable making a promise. She believed him; he had never lied to her before. I know Eric well enough to know if Haleigh had continued to bug him about the car for the next 3 years, he would have been hurt or annoyed. The hurt may have come from her not trusting his word. 

I have often asked in Faith for the Lord to heal me. He heard me for the first time and knew the answer before I asked it. The first time he listened to my prayer, the miracle was in motion. He never said it would be easy or quick. What I thought was my question was me begging. He thinks, "Why is she asking me this again? I already answered her. Does she not believe me?"

Lazarus was dead for days when Jesus thanked Heavenly Father for bringing him to life before it happened. My mind tells me some things are impossible. I need to have more Faith and thank Heavenly Father for the answers before they come. Having Faith means I cannot see the answer, but He will provide the solution. The Heavenly Father already knows, and he has given his word. He must feel bad when I beg and plead with him.

 I've been getting all my initial pre-operative work done this week. Did I mention I'm having surgery on February 6? This will be my 23rd surgery in less than 5 years. A huge part of me wants to thoroughly check it out. I'm so done with hospitals, surgery, and doctors. The other side says, "It's not your time yet. I can do all things through Christ."

Trying to find a vein today, the RN asked me, "Do they usually have a hard time finding your veins?" I smiled and politely replied, "Yes, they usually do" She was frustrated, and after the sixth poke, she said, "I'm going to try one more time. If I can't get a drawback, I will get someone to help me" She finally had to take the blood out of the upper part of my arm just below my elbow. Painful? Yes, it was, but I was calm. Before she rolled me into the CT scan, I asked if she would shut my right eyelid. She did; what a job, was my thought. When the contrast entered my body, a sudden warmth penetrated every cell. It was a strange sensation; my fingers tingled, I needed to pee, and my ears burned. This was all done at the Maricopa County Hospital. Dr. Lettieri is employed by the Mayo Clinic in Rochester but does facial trauma surgery at Mayo Clinic and Maricopa. More about him later; I am again blessed with an incredible surgeon.

I left Maricopa Hospital and went to the Mayo Clinic Hospital to finish the rest of my pre-operative work. Time to collapse some more veins. I dreaded going into the blood lab, knowing they would have difficulty finding a vein. After another 7 or 8 pokes, she finally got a smaller needle, which I had asked her to do in the beginning ... No one believed me. She finally found a working vein on the side of my left hand close to my wrist...painful? Umm ... Yes, but grateful she found one. She had tears in her eyes. I told her it was ok, and she said it looked like I had been poked earlier. I told her she said she couldn't believe how calm I was. I left there, sat in my car with my head on the steering wheel, and cried just a little.

I must believe the Lord is on my side; he knows what is best for me. Put it in his hands and let it go. Today, I will thank him for the healing coming my way.

I AM

 

SUNDAY, JANUARY 18, 2015

I Am

The past couple of months have been a mix of emotions. I am so excited for our new grandbaby to arrive in February. Kaitlyn is so cute and pregnant, and I love watching Brian transitioning from husband mode to the responsibility of becoming a father. They are going to be fantastic parents.

I've decided Cleveland Clinic is a great facility, but not for me. It's too difficult to be away from my family. After my last surgery in December, I have not heard back from them. This makes me nervous. We have been told several times that there is a small window of opportunity when working with a nerve. After discussing my feelings with Heather and Doctor Barrs, we decided to get me in with a fantastic doctor at Mayo Clinic. He is employed by Rochester Mayo Clinic but resides here in Arizona. He works at the Maricopa County Hospital and surgeries at Mayo Clinic in Arizona, seeing nerve and trauma patients every Wednesday and FridaFridays blessed to get an appointment with him.

I will have another surgery on February 8 feel good about the procedure Dr. Lettieri will perform. With this first surgery, I will have a much longer, more risky surgery in a few months. I will be spending at least a week in the ICU. I am at peace with our decision. I know I will be questioned about why I am going through more surgeries. Several people have already told me that if my doctor wants to do any more, I should say to them no. It was suggested I should just be happy with how I look and move forward.

I have contemplated and pondered that bold statement for over a month now. I am not a quitter; I am strong and willing to do whatever it takes to regain my smile. Vain? I am not fighting against a time frame to work with this nerve. I know myself well enough to know I will have regrets if I don't try, and that window closes. I choose to leave this life with no shame. Once I am told there is nothing more they can do, I will let go, but until then, this is what I think is best.

I want to point out that only 2% of people with a nerve die for no reason. This is not caused by a stroke or Bell's palsy. Most of those patients have a complete restoration of facial paralysis. My nerve is dead. It is not returning to life, not with therapy or standing in front of the mirror daily, begging facial muscles to move. There is no comfort I get knowing I need to live with this. There are no support groups. I have felt alone and disconnected from my family and friends. I have shed more tears over this than ever over my cancer diagnosis. I will not apologize to anyone for how I feel. I would hope people would be considerate of the decisions I have to make; they are difficult.

Most of us, including me, have this conception of ourselves. None of us want to think we are concerned with the look on our faces. I am here to tell you unless you have been through this, a part of that 2%, you do not know how you would handle it. This has messed with my head and made me doubt myself. I'm trying so hard to be patient, to remember when I felt like most of you. The fact is, I am part of that 2%, and I do have to deal with it. This may take years for me to feel comfortable. So many people have asked me why I am involved with Nerium International. It has been a year now since I made that decision. Before the paralysis, I felt like I needed to get out of the cancer world, and instead of always thinking about my next doctor appointment, I reconnected with friends.

Little, my life's best decisions were to with self-development. I know, without a doubt, the Lord was watching me. He knew what this facial paralysis would do to me. I have learned to love myself on a level wholly different than I ever imagined I could. Happiness comes from within; it is a process of finding yourself. I am in that process now. I have friends who don't know anything about my cancer journey, who didn't know me before the facial paralysis. They have helped me along this road of self-awareness. My friends, who have known me for years and seen me through so much, will forever be embedded in my heart; I love them eternally.

I have nothing to offer Nerium International, the company will grow and flourish with or without me, but I need to thrive and grow right now. I feel a part of something special; the philosophy of the company I already believed in, the integrity and loyalty I think is something I have wanted to be a part of my entire life. This is so much more than money for me, and I can make a difference and help others do the same. Right now, this is where I need to be. I have relied on the Lord for 5 years to make the correct decisions. I will not turn my back on the feelings I have now. I know He is with me and blessing me along this journey. I am continually telling myself I am beautiful, a daughter of God, an influence, and important, I am going to survive, and I am choosing the right.